Delaware

Clinical Centers

University of Virginia

Medical Director: Dr. Min Park

Phone: (434) 924-2735

Penn Medicine, Hospital of the University of Pennsylvania 

Medical Director and Cerebrovascular Surgeon: Dr. Jan-Karl Burkhardt

Phone: 215-662-3487

COMMUNITY CONNECTIONS

The Alliance to Cure Cavernous Malformation has a large Facebook group that is a great place to connect with other members from around the country and around the world.

We also have some smaller, more specific groups, including a group for people affected by brainstem lesionsspinal lesions, and those who are parents of affected children or are caregivers.

UPCOMING EVENTS

If you’re interested in working with us to create a local group to fundraise or for support, reach out to Linda Fuchser at Linda@AllianceToCure.org.

Our calendar shares both local events and also national opportunities. You will see that we have support groups twice a week and also CCM101 once a month, as well as monthly webinars and community gatherings both in person and virtually.

If there are no events in your state, you will see events online and around the country.

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