Community Alliance
We are very close to forming a New England Community Alliance, and we would love to know if you are interested in joining! Please contact Darla Clayton at darla@alliancetocure.org to let us know.
Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 4-5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!
Please contact Darla Clayton at darla@alliancetocure.org to let her know you are interested in participating or if you are interested in holding an event in your community.
In the meantime, please request to join our Northeast Facebook group for peer support and more information about local resources.
Center of Excellence (COE):
Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD
Phone: (617) 919-1379
upcoming events online and around the country
Apr 18 @ 7:00 pm – 8:00 pm
7:00 pm
Join us on April 18th at 7 PM Eastern, 4 PM Pacific for this webinar where Delaney Fisher, Ph.D., will share an update on focussed ultrasound to treat Cavernous Malformation (CM). https://us02web.zoom.us/webinar/register/WN_15SxTIIaRZaVbVhCN4GnWQ
Apr 18 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 18 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Apr 22 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 22 @ 6:30 pm – 7:30 pm
6:30 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month at 6:30 PM PST. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Apr 25 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 29 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 1 @ 7:00 pm – 8:00 pm
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
May 2 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
May 4 @ 9:00 am – 10:00 am
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
May 6 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 7 @ 7:00 pm – 8:00 pm
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
May 8 @ 7:00 pm – 8:00 pm
7:00 pm
Greater DC Community monthly Zoom. Join us every second Wednesday of the month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09
May 9 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
May 11 @ 10:00 am – 11:00 am
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday at 10 AM PST here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
May 13 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 13 @ 3:00 pm – 4:00 pm
3:00 pm
Arkansas/Missouri Community monthly Zoom meeting at 3 pm CST. Join us on the second Monday of every month on Zoom. https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
May 13 @ 7:00 pm – 8:00 pm
7:00 pm
Texas Community Monthly Zoom. Join us on the second Monday of every month at 7 PM CST at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
May 14 @ 7:00 pm – 8:00 pm
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday at 7 PM EST of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
May 16 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
May 16 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Chip-In for a Cure Golf Scramble @ PB Dye Country Club
May 20 @ 10:30 am – 3:00 pm
10:30 am
Join us on the prestigious PB Dye golf course for a fun day of golf and community all benefiting Alliance to Cure Cavernous Malformation. 8:00 am Check-in, breakfast, driving range 10:30 am start time (shotgun...
May 20 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
May 20 @ 7:00 pm – 8:00 pm
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month at 7 PM MST here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
May 21 @ 3:00 pm – 4:00 pm
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month at 12:00 pm PST, 2 PM CST, 3 PM EST here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
May 21 @ 7:00 pm – 8:00 pm
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday at 7 PM EST of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
SoCal 2nd Annual Golf Tournament @ Twin Oaks Golf Course
May 23 all-day
12:00 am
Join us on the course for a fun day of golf and community, benefiting Alliance to Cure Cavernous Malformation. The format of the golf scramble is such that each golfer on the team hits a...
May 23 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
May 27 @ 12:00 pm – 1:00 pm
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
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