Community Alliance
We are very close to forming a local Community Alliance, and we would love to know if you are interested! Please contact Lindsay Ramirez at lindsay@alliancetocure.org to let us know.
Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 4-5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!
Please contact Lindsay Ramirez at lindsay@alliancetocure.org to let her know you are interested in participating or if you are interested in holding an event in your community.
In the meantime, please request to join our Great Lakes/Central Plains Facebook group for peer support and more information about local resources.
Center of Excellence (COE):
The University of Chicago is the closest recognized Center of Excellence.
For a complete list of Center of Excellence faculty, please visit our Center of Excellence page.
University of Chicago Medicine
Medical Director: Dr. Issam Awad
Central Scheduling: (773) 702-2123
upcoming events online and around the country
Oct 2 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Oct 3 @ 7:00 pm – 8:00 pm
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
Oct 4 @ 7:00 pm – 8:00 pm
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
Oct 5 @ 8:00 pm – 9:00 pm
8:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom Oct 5 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct 7 @ 9:00 am – 10:00 am
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month, follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Oct 9 @ 3:00 pm – 4:00 pm
3:00 pm
Arkansas/Missouri Community monthly Zoom meeting. Join us on the second Monday of every month at this link: https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Oct 9 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Oct 9 @ 7:00 pm – 8:00 pm
7:00 pm
Texas Community, join us every second Monday of the month at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Oct 10 @ 7:00 pm – 8:00 pm
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Oct 12 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct 14 @ 10:00 am – 11:00 am
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Oct 16 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Oct 16 @ 7:00 pm – 8:00 pm
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Oct 17 @ 7:00 pm – 8:00 pm
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Oct 17 @ 3:00 pm – 4:00 pm
3:00 pm
Spinal Community monthly Zoom. Join us on the third Tuesday of the month here at this link: https://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
Oct 19 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct 19 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Oct 23 @ 12:00 pm – 1:00 pm
12:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Oct 23 @ 7:00 pm – 8:00 pm
7:00 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Oct 26 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct 29 @ 8:00 am – 12:00 pm
8:00 am
Join Our Malibu Walk/Fun Run to Support the Alliance to Cure Cavernous Malformation! Together, we can make a profound difference in the lives of those affected by Cavernous Malformation. Let’s come together as a community...
Oct 30 @ 1:00 pm – 2:00 pm
1:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Nov 1 @ 7:00 pm – 8:00 pm
7:00 pm
Tri-State Community monthly Zoom. Join us every first Monday of the month. Follow the link: https://us06web.zoom.us/j/87910260457?pwd=ZmtwUnp1R3o0N1NsMFpkMy9YTXpZZz09
Nov 2 @ 9:00 pm – 10:00 pm
9:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom Nov 2 @ 9:00 pm – 10:00 pm
9:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Nov 4 @ 9:00 am – 10:00 am
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month, follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Nov 4 @ 8:00 am – 12:00 pm
8:00 am
Join Our 3rd Annual Arizona Walk to Support the Alliance to Cure Cavernous Malformation! Together, we can make a profound difference in the lives of those affected by Cavernous Malformation. Let’s come together as a...
Nov 6 @ 1:00 pm – 2:00 pm
1:00 pm
Join us for a casual coffee chat and support! Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Nov 7 @ 7:00 pm – 8:00 pm
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
