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X-WR-CALNAME:Alliance to Cure Cavernous Malformation
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X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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DTSTART;TZID=America/New_York:20251030T190000
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SUMMARY:Webinar- Questions to Ask\, Conversations to Start: A Guide to Primary Care for People Living with Cavernous Malformation
DESCRIPTION:Join us on Thursday\, October 30\, 2025\, at 7:00 pm ET for a new webinar presented by Katie Garbarini\, MS\, CGC\, Sara Sukalich\, MD and Steph Rayburn\, MD.  This webinar will focus on primary care for patients with cavernous malformation (CCM). We will explore the role of primary care in managing CCMs and related symptoms\, how to start conversations with your primary care provider about the new CCM guidelines\, and how to build a collaborative team that involves specialists and your primary care provider. \nRegister for the webinar here.
URL:https://www.alliancetocure.org/event/webinar-questions-to-ask-conversations-to-start-a-guide-to-primary-care-for-people-living-with-cavernous-malformation/
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DTSTART;TZID=America/New_York:20251030T200000
DTEND;TZID=America/New_York:20251030T210000
DTSTAMP:20260628T081843
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
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SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-10-30/
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LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
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DTSTART;TZID=America/New_York:20251030T200000
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DTSTAMP:20260628T081843
CREATED:20250415T220952Z
LAST-MODIFIED:20250415T220953Z
UID:10000970-1761854400-1761858000@www.alliancetocure.org
SUMMARY:Monthly Millennial Support Group
DESCRIPTION:Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. \nRegister here: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0
URL:https://www.alliancetocure.org/event/monthly-millennial-support-group-2/2025-10-30/
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