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X-WR-CALNAME:Alliance to Cure Cavernous Malformation
X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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DTSTART;TZID=America/New_York:20260430T190000
DTEND;TZID=America/New_York:20260430T200000
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CREATED:20260417T232411Z
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UID:10002820-1777575600-1777579200@www.alliancetocure.org
SUMMARY:Stroke Pizza Second Chance Bookclub
DESCRIPTION:We’re hosting a second book club after hearing from several people who weren’t able to attend the first and asked for another opportunity to join. \nThis will be a relaxed\, low-pressure gathering—whether you’ve finished the book\, just started\, or simply want to listen in\, you’re welcome. \nApril 30th\, 2026 at 7:00 PM ET\, 4:00 PM PT. \nRegister for the meeting \nLearn more about Stroke Pizza and how to get the book for free here. \nStroke Pizza is a collection of short stories written by members of the cavernous malformation (CCM) community. \nIn 2025\, as Rare Disease Day approached\, a small group of patients and caregivers began searching for a rare disease anthology that included CCM. When they couldn’t find one\, they decided to create their own. Over the course of a year\, participants met monthly to write\, share\, revise\, and encourage one another — transforming a book club idea into a meaningful writing project. \nThe result is a compilation of honest\, varied\, and deeply personal stories about living with CCM — stories that explore resilience\, humor\, loss\, adaptation\, and the unexpected moments that shape life with a rare neurovascular condition. \n 
URL:https://www.alliancetocure.org/event/stroke-pizza-second-chance-bookclub/
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DTSTART;TZID=America/New_York:20260430T200000
DTEND;TZID=America/New_York:20260430T210000
DTSTAMP:20260430T052815
CREATED:20250415T220952Z
LAST-MODIFIED:20250415T220953Z
UID:10000976-1777579200-1777582800@www.alliancetocure.org
SUMMARY:Monthly Millennial Support Group
DESCRIPTION:Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. \nRegister here: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0
URL:https://www.alliancetocure.org/event/monthly-millennial-support-group-2/2026-04-30/
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DTSTART;TZID=America/New_York:20260430T200000
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DTSTAMP:20260430T052815
CREATED:20251126T032312Z
LAST-MODIFIED:20260414T182148Z
UID:10000413-1777579200-1777582800@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-04-30/
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LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
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