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X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
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TZOFFSETTO:-0500
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DTSTART:20241103T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250814T200000
DTEND;TZID=America/New_York:20250814T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000376-1755201600-1755205200@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-08-14/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250818T120000
DTEND;TZID=America/New_York:20250818T130000
DTSTAMP:20260404T072906
CREATED:20240822T144701Z
LAST-MODIFIED:20240822T144758Z
UID:10000115-1755518400-1755522000@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee Chat
DESCRIPTION:Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat/2025-08-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250818T200000
DTEND;TZID=America/New_York:20250818T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001335-1755547200-1755550800@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-08-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T190000
DTEND;TZID=America/New_York:20250821T200000
DTSTAMP:20260404T072906
CREATED:20250808T154848Z
LAST-MODIFIED:20250808T154848Z
UID:10001716-1755802800-1755806400@www.alliancetocure.org
SUMMARY:CCM Care: Neurology\, Seizures\, and Hormonal Considerations
DESCRIPTION:Join us Thursday\, August 21st at 7:00 Eastern for what is sure to be a fantastic webinar presented by some of the team at the Rochester Mayo Clinic Center of Excellence. Dr. Kelly Flemming and Dr. Kelsey Smith will share updates from the newest guidelines on neurological care for CCM\, seizure management\, and hormone-related considerations for women. \nRegister for the webinar at this link: https://us02web.zoom.us/webinar/register/WN_lxWYvSo0Qqa2tg9epxaoYg \n \n  \n 
URL:https://www.alliancetocure.org/event/ccm-care-neurology-seizures-and-hormonal-considerations/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Mayo-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T200000
DTEND;TZID=America/New_York:20250821T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000377-1755806400-1755810000@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-08-21/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250825T120000
DTEND;TZID=America/New_York:20250825T130000
DTSTAMP:20260404T072906
CREATED:20240822T144701Z
LAST-MODIFIED:20240822T144758Z
UID:10000116-1756123200-1756126800@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee Chat
DESCRIPTION:Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat/2025-08-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250825T200000
DTEND;TZID=America/New_York:20250825T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001336-1756152000-1756155600@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-08-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T190000
DTEND;TZID=America/New_York:20250828T200000
DTSTAMP:20260404T072906
CREATED:20250826T045507Z
LAST-MODIFIED:20251126T032004Z
UID:10001909-1756407600-1756411200@www.alliancetocure.org
SUMMARY:Brainstem Group
DESCRIPTION:Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive\, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern\, 4:00 PM Pacific to share experiences\, ask questions\, and build community. Whether you’re newly diagnosed or have been living with CCM for years\, you’re welcome here.\n\n\nRegister in advance for the group here: https://us02web.zoom.us/…/register/l2jb4aqhSaaZSZAxIq5sLg.
URL:https://www.alliancetocure.org/event/brainstem-group/2025-08-28/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Green-Torn-How-to-Create-Creative-Mind-Youtube-Channel-Art-1920-x-1080-px-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T200000
DTEND;TZID=America/New_York:20250828T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000378-1756411200-1756414800@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-08-28/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250829T140000
DTEND;TZID=America/New_York:20250829T150000
DTSTAMP:20260404T072906
CREATED:20250626T042813Z
LAST-MODIFIED:20250626T042813Z
UID:10001650-1756476000-1756479600@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club/2025-08-29/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250901T200000
DTEND;TZID=America/New_York:20250901T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001337-1756756800-1756760400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-09-01/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T190000
DTEND;TZID=America/New_York:20250904T200000
DTSTAMP:20260404T072906
CREATED:20240930T223617Z
LAST-MODIFIED:20250304T163321Z
UID:10000599-1757012400-1757016000@www.alliancetocure.org
SUMMARY:CCM 101
DESCRIPTION:CCM 101 is an informational meeting for new members offered on the first Thursday of the month\, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: \nhttps://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
URL:https://www.alliancetocure.org/event/ccm-101/2025-09-04/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/09/461563448_1246625753198558_4872240322848949306_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T200000
DTEND;TZID=America/New_York:20250904T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000379-1757016000-1757019600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-09-04/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T070000
DTEND;TZID=America/New_York:20250906T090000
DTSTAMP:20260404T072906
CREATED:20241017T150221Z
LAST-MODIFIED:20260126T213543Z
UID:10002701-1757142000-1757149200@www.alliancetocure.org
SUMMARY:New Mexico Community Monthly Zoom
DESCRIPTION:  \nThe purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! We meet on the first Saturday of the month at 9 am MST. Join here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09 Reach out to me with any questions: linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/community-monthly-zoom/2025-09-06/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/New-Mexico-2-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T130000
DTSTAMP:20260404T072906
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000117-1757332800-1757336400@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-09-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T200000
DTEND;TZID=America/New_York:20250908T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001338-1757361600-1757365200@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-09-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250910T190000
DTEND;TZID=America/New_York:20250910T200000
DTSTAMP:20260404T072906
CREATED:20250320T135132Z
LAST-MODIFIED:20260209T214057Z
UID:10002160-1757530800-1757534400@www.alliancetocure.org
SUMMARY:Eastern Standard Time Zone Monthly Zoom
DESCRIPTION:Are you in Connecticut\, Delaware\, Florida\, Georgia\, Maine\, Maryland\, Massachusetts\, Michigan\, New Hampshire\, New Jersey\, New York\, North Carolina\, Ohio\, Rhode Island\, South Carolina\, Vermont\, Virginia\, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
URL:https://www.alliancetocure.org/event/eastern-standard-time-zone-monthly-zoom-2/2025-09-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/03/EST-1-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T190000
DTEND;TZID=America/New_York:20250911T200000
DTSTAMP:20260404T072906
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000908-1757617200-1757620800@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2025-09-11/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T190000
DTEND;TZID=America/New_York:20250911T200000
DTSTAMP:20260404T072906
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001718-1757617200-1757620800@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2025-09-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T200000
DTEND;TZID=America/New_York:20250911T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000380-1757620800-1757624400@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-09-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T100000
DTEND;TZID=America/New_York:20250913T110000
DTSTAMP:20260404T072906
CREATED:20241017T200153Z
LAST-MODIFIED:20251216T193435Z
UID:10000810-1757757600-1757761200@www.alliancetocure.org
SUMMARY:NorCal Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! Register here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_  If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/norcal-community-monthly-zoom/2025-09-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/NorCal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250915T120000
DTEND;TZID=America/New_York:20250915T130000
DTSTAMP:20260404T072906
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000119-1757937600-1757941200@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-09-15/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250915T200000
DTEND;TZID=America/New_York:20250915T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001339-1757966400-1757970000@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-09-15/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T190000
DTEND;TZID=America/New_York:20250918T200000
DTSTAMP:20260404T072906
CREATED:20250827T145634Z
LAST-MODIFIED:20250827T145634Z
UID:10001970-1758222000-1758225600@www.alliancetocure.org
SUMMARY:Webinar - Supporting Brain Development in Children with CCM
DESCRIPTION:Join us on Thursday\, September 18\, 2025 at 7 pm ET \nIn this webinar\, Jane Tavyev Asher\, MD\, Director of Child Neurology\, Neurodevelopmental Disabilities\, and Pediatric Lifestyle Medicine\, will share an overview of how the brain develops and adapts in childhood. She will highlight activities that can support motor and cognitive functioning and provide guidance on advocating for school services so children with CCM can thrive. \nRegister here
URL:https://www.alliancetocure.org/event/webinar-supporting-brain-development-in-children-with-ccm/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Jane-Asher.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T200000
DTEND;TZID=America/New_York:20250918T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000381-1758225600-1758229200@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-09-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250922T120000
DTEND;TZID=America/New_York:20250922T130000
DTSTAMP:20260404T072906
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000120-1758542400-1758546000@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-09-22/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250922T200000
DTEND;TZID=America/New_York:20250922T210000
DTSTAMP:20260404T072906
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001340-1758571200-1758574800@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-09-22/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250925T190000
DTEND;TZID=America/New_York:20250925T200000
DTSTAMP:20260404T072906
CREATED:20250826T045507Z
LAST-MODIFIED:20251126T032004Z
UID:10001910-1758826800-1758830400@www.alliancetocure.org
SUMMARY:Brainstem Group
DESCRIPTION:Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive\, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern\, 4:00 PM Pacific to share experiences\, ask questions\, and build community. Whether you’re newly diagnosed or have been living with CCM for years\, you’re welcome here.\n\n\nRegister in advance for the group here: https://us02web.zoom.us/…/register/l2jb4aqhSaaZSZAxIq5sLg.
URL:https://www.alliancetocure.org/event/brainstem-group/2025-09-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Green-Torn-How-to-Create-Creative-Mind-Youtube-Channel-Art-1920-x-1080-px-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250925T200000
DTEND;TZID=America/New_York:20250925T210000
DTSTAMP:20260404T072906
CREATED:20240822T145018Z
LAST-MODIFIED:20240822T145018Z
UID:10000382-1758830400-1758834000@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group/2025-09-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250926T140000
DTEND;TZID=America/New_York:20250926T150000
DTSTAMP:20260404T072906
CREATED:20250626T042813Z
LAST-MODIFIED:20250626T042813Z
UID:10001651-1758895200-1758898800@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club/2025-09-26/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
END:VCALENDAR