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X-WR-CALNAME:Alliance to Cure Cavernous Malformation
X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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TZID:America/New_York
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DTSTART:20250309T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261026T120000
DTEND;TZID=America/New_York:20261026T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000177-1793016000-1793019600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-10-26/
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LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261026T200000
DTEND;TZID=America/New_York:20261026T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001397-1793044800-1793048400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-10-26/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261029T190000
DTEND;TZID=America/New_York:20261029T200000
DTSTAMP:20261007T142939Z
CREATED:20261007T142939Z
LAST-MODIFIED:20261007T142939Z
UID:10003028-1793300400-1793304000@www.alliancetocure.org
SUMMARY:Webinar: Coping with Fatigue & CCM
DESCRIPTION:Fatigue is one of the most common symptoms experienced by people living with cerebral cavernous malformation (CCM). In this webinar\, Natalie Neale\, MD\, of UCSF\, covers the common causes of fatigue in CCM\, when it’s time to bring it up with your care team\, and practical ways to manage your energy day-to-day. Bring your questions and leave with tools you can start using right away.\nRegistration link: https://us02web.zoom.us/webinar/register/WN_tK-jrLPTQTuk0hCzYFAtnA#/registration\n\nWebinar date & time: Thursday\, October 29\, at 7:00 pm ET via Zoom
URL:https://www.alliancetocure.org/event/webinar-coping-with-fatigue-ccm/
CATEGORIES:webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261029T200000
DTEND;TZID=America/New_York:20261029T210000
DTSTAMP:20250415T220953Z
CREATED:20250415T220952Z
LAST-MODIFIED:20250415T220953Z
UID:10000982-1793304000-1793307600@www.alliancetocure.org
SUMMARY:Monthly Millennial Support Group
DESCRIPTION:Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. \nRegister here: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0
URL:https://www.alliancetocure.org/event/monthly-millennial-support-group-2/2026-10-29/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261029T200000
DTEND;TZID=America/New_York:20261029T210000
DTSTAMP:20260529T002356Z
CREATED:20251126T032312Z
LAST-MODIFIED:20260529T002356Z
UID:10000439-1793304000-1793307600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw \nAfter registering\, you will receive a confirmation email with details on joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-10-29/
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LOCATION:https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261030T140000
DTEND;TZID=America/New_York:20261030T150000
DTSTAMP:20260625T201427Z
CREATED:20260625T201427Z
LAST-MODIFIED:20260625T201427Z
UID:10002838-1793368800-1793372400@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our Write Club meetings. We usually meet every other Friday. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club-2-2-2/2026-10-30/
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