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METHOD:PUBLISH
X-WR-CALNAME:Alliance to Cure Cavernous Malformation
X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
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TZOFFSETTO:-0500
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DTSTART:20241103T060000
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
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DTSTART:20250309T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
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BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T100000
DTEND;TZID=America/New_York:20251108T110000
DTSTAMP:20251216T193435Z
CREATED:20241017T200153Z
LAST-MODIFIED:20251216T193435Z
UID:10000812-1762596000-1762599600@www.alliancetocure.org
SUMMARY:NorCal Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! Register here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_  If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/norcal-community-monthly-zoom/2025-11-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/NorCal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T120000
DTEND;TZID=America/New_York:20251110T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000127-1762776000-1762779600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T200000
DTEND;TZID=America/New_York:20251110T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001347-1762804800-1762808400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T190000
DTEND;TZID=America/New_York:20251113T200000
DTSTAMP:20250215T184250Z
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000910-1763060400-1763064000@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2025-11-13/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T190000
DTEND;TZID=America/New_York:20251113T200000
DTSTAMP:20250809T191944Z
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001720-1763060400-1763064000@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2025-11-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T200000
DTEND;TZID=America/New_York:20251113T210000
DTSTAMP:20251126T032158Z
CREATED:20251028T161909Z
LAST-MODIFIED:20251126T032158Z
UID:10000388-1763064000-1763067600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2/2025-11-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2-e1776190892787.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251117T120000
DTEND;TZID=America/New_York:20251117T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000128-1763380800-1763384400@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-17/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251117T200000
DTEND;TZID=America/New_York:20251117T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001348-1763409600-1763413200@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-17/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T200000
DTEND;TZID=America/New_York:20251120T210000
DTSTAMP:20251126T032158Z
CREATED:20251028T161909Z
LAST-MODIFIED:20251126T032158Z
UID:10000390-1763668800-1763672400@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2/2025-11-20/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2-e1776190892787.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T120000
DTEND;TZID=America/New_York:20251124T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000129-1763985600-1763989200@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-24/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T200000
DTEND;TZID=America/New_York:20251124T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001349-1764014400-1764018000@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-24/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T120000
DTEND;TZID=America/New_York:20251201T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000130-1764590400-1764594000@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-01/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T200000
DTEND;TZID=America/New_York:20251201T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001350-1764619200-1764622800@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-01/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T190000
DTEND;TZID=America/New_York:20251204T200000
DTSTAMP:20251028T162518Z
CREATED:20251002T041134Z
LAST-MODIFIED:20251028T162518Z
UID:10000602-1764874800-1764878400@www.alliancetocure.org
SUMMARY:CCM 101
DESCRIPTION:CCM 101 is an informational meeting for new members offered on the first Thursday of the month\, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: \nhttps://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
URL:https://www.alliancetocure.org/event/ccm-101-2/2025-12-04/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/09/461563448_1246625753198558_4872240322848949306_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T200000
DTEND;TZID=America/New_York:20251204T210000
DTSTAMP:20260529T002356Z
CREATED:20251126T032312Z
LAST-MODIFIED:20260529T002356Z
UID:10000391-1764878400-1764882000@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw \nAfter registering\, you will receive a confirmation email with details on joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-04/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2-e1776190892787.png
LOCATION:https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T070000
DTEND;TZID=America/New_York:20251206T090000
DTSTAMP:20260126T213543Z
CREATED:20241017T150221Z
LAST-MODIFIED:20260126T213543Z
UID:10002704-1765004400-1765011600@www.alliancetocure.org
SUMMARY:New Mexico Community Monthly Zoom
DESCRIPTION:  \nThe purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! We meet on the first Saturday of the month at 9 am MST. Join here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09 Reach out to me with any questions: linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/community-monthly-zoom/2025-12-06/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/New-Mexico-2-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T120000
DTEND;TZID=America/New_York:20251208T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000131-1765195200-1765198800@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T200000
DTEND;TZID=America/New_York:20251208T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001351-1765224000-1765227600@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T190000
DTEND;TZID=America/New_York:20251211T200000
DTSTAMP:20250215T184250Z
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000911-1765479600-1765483200@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2025-12-11/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T190000
DTEND;TZID=America/New_York:20251211T200000
DTSTAMP:20250809T191944Z
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001721-1765479600-1765483200@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2025-12-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T200000
DTEND;TZID=America/New_York:20251211T210000
DTSTAMP:20260529T002356Z
CREATED:20251126T032312Z
LAST-MODIFIED:20260529T002356Z
UID:10000393-1765483200-1765486800@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw \nAfter registering\, you will receive a confirmation email with details on joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2-e1776190892787.png
LOCATION:https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T100000
DTEND;TZID=America/New_York:20251213T110000
DTSTAMP:20251216T193435Z
CREATED:20241017T200153Z
LAST-MODIFIED:20251216T193435Z
UID:10000813-1765620000-1765623600@www.alliancetocure.org
SUMMARY:NorCal Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! Register here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_  If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/norcal-community-monthly-zoom/2025-12-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/NorCal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T140000
DTEND;TZID=America/New_York:20251213T190000
DTSTAMP:20251125T155117Z
CREATED:20251125T155117Z
LAST-MODIFIED:20251125T155117Z
UID:10002258-1765634400-1765652400@www.alliancetocure.org
SUMMARY:3rd Annual CCM DC Holiday Party
DESCRIPTION:SAVE THE DATE — Alliance to Cure Cavernous Malformation Greater DC Holiday Open House \n\n\n The cortex is buzzing\, the season is near — it’s time for connection\, compassion\, and cheer! This year\, we’re trying something new: we’ll be gathering at a beautiful\, ADA-accessible home in Potomac\, MD.\nWe’ll enjoy delicious food\, a White Elephant gift exchange\, and the company of our CCM community. There may even be an update about the Alliance and ongoing CCM research. A special guest might make an appearance — hope has never been stronger!\n\n\n Saturday\, December 13 | 2–7 PM (come and go as you like)\n Address: 9421 Newbridge Dr\, Potomac\, MD 20854\nThe home is wheelchair accessible with plenty of parking.\nIt is technically Metro-accessible\, though you may want to carpool or Uber/Lyft from a station or agreed-upon location\, as it is a bit of a trek.\n\n\n Potluck:\nBring a dish that you love! Please sign up and let us know at least 3 days ahead what you are bringing so the hosts can coordinate the menu.\n White Elephant Gift:\nBring an optional practical gift (no more than $25) to join the fun. The exchange will begin around 4 PM.\n\n\n Questions\, concerns\, or special requests (disability\, dietary\, etc.):\nLet us know ASAP. We’ll do our best to accommodate.\nWho’s invited:\nPatients\, caregivers\, families (kids included)\, and friends — we hope to have as many patients and supporters as possible!\nHosts & Organizers:\nWill and Patty Eitington (hosts)\nWill\, Patty\, and Allison Mintz (organizers)\n\n\n We can’t wait to celebrate with you!\nRSVP: Please respond by December 9 if possible. Include the number of people in your party.\n• Allison Mintz: Asmintz50@gmail.com | (650) 704-9134\n• Will & Patty Eitington: Eitington@gmail.com | Will: (240) 479-0784 | Patty: (202) 390-0375
URL:https://www.alliancetocure.org/event/3rd-annual-ccm-dc-holiday-party/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T120000
DTEND;TZID=America/New_York:20251215T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000132-1765800000-1765803600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-15/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T200000
DTEND;TZID=America/New_York:20251215T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001352-1765828800-1765832400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-15/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20251203T033302Z
CREATED:20251203T001252Z
LAST-MODIFIED:20251203T033302Z
UID:10002402-1766084400-1766088000@www.alliancetocure.org
SUMMARY:Webinar - From Plate to Protection: Nutrition Approaches to Cavernous Malformation
DESCRIPTION:Webinar – From Plate to Protection: Nutrition Approaches to Cavernous Malformation. \nPresented by Megan N. Morris\, Registered Dietitian & Olivia Morgan\, Registered Dietitian. \nThursday\, December 18\, 7:00 PM Eastern\, 4:00 PM Pacific. \nRegister for the webinar here. \n  \n \n 
URL:https://www.alliancetocure.org/event/webinar-from-plate-to-protection-nutrition-approaches-to-cavernous-malformation/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/12/Nutrition-Webinar-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T200000
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260529T002356Z
CREATED:20251126T032312Z
LAST-MODIFIED:20260529T002356Z
UID:10000394-1766088000-1766091600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw \nAfter registering\, you will receive a confirmation email with details on joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2-e1776190892787.png
LOCATION:https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251219T140000
DTEND;TZID=America/New_York:20251219T150000
DTSTAMP:20251126T032848Z
CREATED:20251126T032848Z
LAST-MODIFIED:20251126T032848Z
UID:10001653-1766152800-1766156400@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club-2/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251222T120000
DTEND;TZID=America/New_York:20251222T130000
DTSTAMP:20251126T033538Z
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000133-1766404800-1766408400@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-22/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251222T200000
DTEND;TZID=America/New_York:20251222T210000
DTSTAMP:20250506T012329Z
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001353-1766433600-1766437200@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-22/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
END:VCALENDAR