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X-WR-CALNAME:Alliance to Cure Cavernous Malformation
X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
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BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
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TZOFFSETTO:-0500
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DTSTART:20241103T060000
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TZOFFSETFROM:-0500
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TZOFFSETTO:-0500
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DTSTART:20251102T060000
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BEGIN:DAYLIGHT
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TZOFFSETTO:-0400
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T120000
DTEND;TZID=America/New_York:20251110T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000127-1762776000-1762779600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T200000
DTEND;TZID=America/New_York:20251110T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001347-1762804800-1762808400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251112T190000
DTEND;TZID=America/New_York:20251112T200000
DTSTAMP:20260405T101720
CREATED:20250320T135132Z
LAST-MODIFIED:20260209T214057Z
UID:10002162-1762974000-1762977600@www.alliancetocure.org
SUMMARY:Eastern Standard Time Zone Monthly Zoom
DESCRIPTION:Are you in Connecticut\, Delaware\, Florida\, Georgia\, Maine\, Maryland\, Massachusetts\, Michigan\, New Hampshire\, New Jersey\, New York\, North Carolina\, Ohio\, Rhode Island\, South Carolina\, Vermont\, Virginia\, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
URL:https://www.alliancetocure.org/event/eastern-standard-time-zone-monthly-zoom-2/2025-11-12/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/03/EST-1-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T190000
DTEND;TZID=America/New_York:20251113T200000
DTSTAMP:20260405T101720
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000910-1763060400-1763064000@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2025-11-13/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T190000
DTEND;TZID=America/New_York:20251113T200000
DTSTAMP:20260405T101720
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001720-1763060400-1763064000@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2025-11-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T200000
DTEND;TZID=America/New_York:20251113T210000
DTSTAMP:20260405T101720
CREATED:20251028T161909Z
LAST-MODIFIED:20251126T032158Z
UID:10000388-1763064000-1763067600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2/2025-11-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251117T120000
DTEND;TZID=America/New_York:20251117T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000128-1763380800-1763384400@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-17/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251117T200000
DTEND;TZID=America/New_York:20251117T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001348-1763409600-1763413200@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-17/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T200000
DTEND;TZID=America/New_York:20251120T210000
DTSTAMP:20260405T101720
CREATED:20251028T161909Z
LAST-MODIFIED:20251126T032158Z
UID:10000390-1763668800-1763672400@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2/2025-11-20/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T120000
DTEND;TZID=America/New_York:20251124T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000129-1763985600-1763989200@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-11-24/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T200000
DTEND;TZID=America/New_York:20251124T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001349-1764014400-1764018000@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-11-24/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T120000
DTEND;TZID=America/New_York:20251201T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000130-1764590400-1764594000@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-01/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T200000
DTEND;TZID=America/New_York:20251201T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001350-1764619200-1764622800@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-01/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T190000
DTEND;TZID=America/New_York:20251204T200000
DTSTAMP:20260405T101720
CREATED:20251002T041134Z
LAST-MODIFIED:20251028T162518Z
UID:10000602-1764874800-1764878400@www.alliancetocure.org
SUMMARY:CCM 101
DESCRIPTION:CCM 101 is an informational meeting for new members offered on the first Thursday of the month\, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: \nhttps://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
URL:https://www.alliancetocure.org/event/ccm-101-2/2025-12-04/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/09/461563448_1246625753198558_4872240322848949306_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T200000
DTEND;TZID=America/New_York:20251204T210000
DTSTAMP:20260405T101720
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000391-1764878400-1764882000@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-04/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T070000
DTEND;TZID=America/New_York:20251206T090000
DTSTAMP:20260405T101720
CREATED:20241017T150221Z
LAST-MODIFIED:20260126T213543Z
UID:10002704-1765004400-1765011600@www.alliancetocure.org
SUMMARY:New Mexico Community Monthly Zoom
DESCRIPTION:  \nThe purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! We meet on the first Saturday of the month at 9 am MST. Join here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09 Reach out to me with any questions: linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/community-monthly-zoom/2025-12-06/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/New-Mexico-2-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T120000
DTEND;TZID=America/New_York:20251208T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000131-1765195200-1765198800@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T200000
DTEND;TZID=America/New_York:20251208T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001351-1765224000-1765227600@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-08/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251210T190000
DTEND;TZID=America/New_York:20251210T200000
DTSTAMP:20260405T101720
CREATED:20250320T135132Z
LAST-MODIFIED:20260209T214057Z
UID:10002163-1765393200-1765396800@www.alliancetocure.org
SUMMARY:Eastern Standard Time Zone Monthly Zoom
DESCRIPTION:Are you in Connecticut\, Delaware\, Florida\, Georgia\, Maine\, Maryland\, Massachusetts\, Michigan\, New Hampshire\, New Jersey\, New York\, North Carolina\, Ohio\, Rhode Island\, South Carolina\, Vermont\, Virginia\, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
URL:https://www.alliancetocure.org/event/eastern-standard-time-zone-monthly-zoom-2/2025-12-10/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/03/EST-1-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T190000
DTEND;TZID=America/New_York:20251211T200000
DTSTAMP:20260405T101720
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000911-1765479600-1765483200@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2025-12-11/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T190000
DTEND;TZID=America/New_York:20251211T200000
DTSTAMP:20260405T101720
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001721-1765479600-1765483200@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2025-12-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T200000
DTEND;TZID=America/New_York:20251211T210000
DTSTAMP:20260405T101720
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000393-1765483200-1765486800@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T100000
DTEND;TZID=America/New_York:20251213T110000
DTSTAMP:20260405T101720
CREATED:20241017T200153Z
LAST-MODIFIED:20251216T193435Z
UID:10000813-1765620000-1765623600@www.alliancetocure.org
SUMMARY:NorCal Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! Register here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_  If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/norcal-community-monthly-zoom/2025-12-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/NorCal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T140000
DTEND;TZID=America/New_York:20251213T190000
DTSTAMP:20260405T101720
CREATED:20251125T155117Z
LAST-MODIFIED:20251125T155117Z
UID:10002258-1765634400-1765652400@www.alliancetocure.org
SUMMARY:3rd Annual CCM DC Holiday Party
DESCRIPTION:SAVE THE DATE — Alliance to Cure Cavernous Malformation Greater DC Holiday Open House \n\n\n The cortex is buzzing\, the season is near — it’s time for connection\, compassion\, and cheer! This year\, we’re trying something new: we’ll be gathering at a beautiful\, ADA-accessible home in Potomac\, MD.\nWe’ll enjoy delicious food\, a White Elephant gift exchange\, and the company of our CCM community. There may even be an update about the Alliance and ongoing CCM research. A special guest might make an appearance — hope has never been stronger!\n\n\n Saturday\, December 13 | 2–7 PM (come and go as you like)\n Address: 9421 Newbridge Dr\, Potomac\, MD 20854\nThe home is wheelchair accessible with plenty of parking.\nIt is technically Metro-accessible\, though you may want to carpool or Uber/Lyft from a station or agreed-upon location\, as it is a bit of a trek.\n\n\n Potluck:\nBring a dish that you love! Please sign up and let us know at least 3 days ahead what you are bringing so the hosts can coordinate the menu.\n White Elephant Gift:\nBring an optional practical gift (no more than $25) to join the fun. The exchange will begin around 4 PM.\n\n\n Questions\, concerns\, or special requests (disability\, dietary\, etc.):\nLet us know ASAP. We’ll do our best to accommodate.\nWho’s invited:\nPatients\, caregivers\, families (kids included)\, and friends — we hope to have as many patients and supporters as possible!\nHosts & Organizers:\nWill and Patty Eitington (hosts)\nWill\, Patty\, and Allison Mintz (organizers)\n\n\n We can’t wait to celebrate with you!\nRSVP: Please respond by December 9 if possible. Include the number of people in your party.\n• Allison Mintz: Asmintz50@gmail.com | (650) 704-9134\n• Will & Patty Eitington: Eitington@gmail.com | Will: (240) 479-0784 | Patty: (202) 390-0375
URL:https://www.alliancetocure.org/event/3rd-annual-ccm-dc-holiday-party/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/11/Holiday-Party-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T120000
DTEND;TZID=America/New_York:20251215T130000
DTSTAMP:20260405T101720
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000132-1765800000-1765803600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2025-12-15/
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LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T200000
DTEND;TZID=America/New_York:20251215T210000
DTSTAMP:20260405T101720
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001352-1765828800-1765832400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2025-12-15/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T200000
DTEND;TZID=America/New_York:20251215T210000
DTSTAMP:20260405T101720
CREATED:20251121T190232Z
LAST-MODIFIED:20260209T220916Z
UID:10001242-1765828800-1765832400@www.alliancetocure.org
SUMMARY:Central Standard Time Zone Zoom
DESCRIPTION:Are you in Alabama\, Arkansas\, Illinois\, Iowa\, Louisiana\, Minnesota\, Mississippi\, Missouri\, Oklahoma\, or Wisconsin? Then\, this monthly Zoom is for YOU! We meet every third Monday of the month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82770270690?pwd=eniehcBHsfsCG1btSXKnd5daCRbaaa.1
URL:https://www.alliancetocure.org/event/central-standard-time-zone-zoom-2/2025-12-15/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/11/CST.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260405T101720
CREATED:20251203T001252Z
LAST-MODIFIED:20251203T033302Z
UID:10002402-1766084400-1766088000@www.alliancetocure.org
SUMMARY:Webinar - From Plate to Protection: Nutrition Approaches to Cavernous Malformation
DESCRIPTION:Webinar – From Plate to Protection: Nutrition Approaches to Cavernous Malformation. \nPresented by Megan N. Morris\, Registered Dietitian & Olivia Morgan\, Registered Dietitian. \nThursday\, December 18\, 7:00 PM Eastern\, 4:00 PM Pacific. \nRegister for the webinar here. \n  \n \n 
URL:https://www.alliancetocure.org/event/webinar-from-plate-to-protection-nutrition-approaches-to-cavernous-malformation/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/12/Nutrition-Webinar-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T200000
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260405T101720
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000394-1766088000-1766091600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2025-12-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251219T140000
DTEND;TZID=America/New_York:20251219T150000
DTSTAMP:20260405T101720
CREATED:20251126T032848Z
LAST-MODIFIED:20251126T032848Z
UID:10001653-1766152800-1766156400@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club-2/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
END:VCALENDAR