BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Alliance to Cure Cavernous Malformation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Alliance to Cure Cavernous Malformation
X-ORIGINAL-URL:https://www.alliancetocure.org
X-WR-CALDESC:Events for Alliance to Cure Cavernous Malformation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260423T200000
DTEND;TZID=America/New_York:20260423T210000
DTSTAMP:20260404T055244
CREATED:20260121T195153Z
LAST-MODIFIED:20260121T195228Z
UID:10002634-1776974400-1776978000@www.alliancetocure.org
SUMMARY:Millennial Support Group
DESCRIPTION:Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket\, that’s okay too!\nThis meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group in a breakout room.\n\nhttps://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0
URL:https://www.alliancetocure.org/event/62926/2026-04-23/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2026/01/millenial-support.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T140000
DTEND;TZID=America/New_York:20260424T150000
DTSTAMP:20260404T055244
CREATED:20251126T033105Z
LAST-MODIFIED:20251126T033106Z
UID:10002326-1777039200-1777042800@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club-2-2/2026-04-24/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T120000
DTEND;TZID=America/New_York:20260427T130000
DTSTAMP:20260404T055244
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000151-1777291200-1777294800@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-04-27/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T200000
DTEND;TZID=America/New_York:20260427T210000
DTSTAMP:20260404T055244
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001371-1777320000-1777323600@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-04-27/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T200000
DTEND;TZID=America/New_York:20260430T210000
DTSTAMP:20260404T055244
CREATED:20250415T220952Z
LAST-MODIFIED:20250415T220953Z
UID:10000976-1777579200-1777582800@www.alliancetocure.org
SUMMARY:Monthly Millennial Support Group
DESCRIPTION:Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. \nRegister here: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0
URL:https://www.alliancetocure.org/event/monthly-millennial-support-group-2/2026-04-30/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2025/02/453600646_10228494312814579_3454735463977389790_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T200000
DTEND;TZID=America/New_York:20260430T210000
DTSTAMP:20260404T055244
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000413-1777579200-1777582800@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-04-30/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T070000
DTEND;TZID=America/New_York:20260502T090000
DTSTAMP:20260404T055244
CREATED:20241017T150221Z
LAST-MODIFIED:20260126T213543Z
UID:10002709-1777705200-1777712400@www.alliancetocure.org
SUMMARY:New Mexico Community Monthly Zoom
DESCRIPTION:  \nThe purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! We meet on the first Saturday of the month at 9 am MST. Join here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09 Reach out to me with any questions: linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/community-monthly-zoom/2026-05-02/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/New-Mexico-2-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260404T055244
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000152-1777896000-1777899600@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-05-04/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T200000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260404T055244
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001372-1777924800-1777928400@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-05-04/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T190000
DTEND;TZID=America/New_York:20260507T200000
DTSTAMP:20260404T055244
CREATED:20251002T041134Z
LAST-MODIFIED:20251028T162518Z
UID:10000607-1778180400-1778184000@www.alliancetocure.org
SUMMARY:CCM 101
DESCRIPTION:CCM 101 is an informational meeting for new members offered on the first Thursday of the month\, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: \nhttps://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
URL:https://www.alliancetocure.org/event/ccm-101-2/2026-05-07/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/09/461563448_1246625753198558_4872240322848949306_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T200000
DTEND;TZID=America/New_York:20260507T210000
DTSTAMP:20260404T055244
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000414-1778184000-1778187600@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-05-07/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T100000
DTEND;TZID=America/New_York:20260509T110000
DTSTAMP:20260404T055244
CREATED:20241017T200153Z
LAST-MODIFIED:20251216T193435Z
UID:10002419-1778320800-1778324400@www.alliancetocure.org
SUMMARY:NorCal Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! Register here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_  If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/norcal-community-monthly-zoom/2026-05-09/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/NorCal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T120000
DTEND;TZID=America/New_York:20260511T130000
DTSTAMP:20260404T055244
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000153-1778500800-1778504400@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-05-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T200000
DTEND;TZID=America/New_York:20260511T210000
DTSTAMP:20260404T055244
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001373-1778529600-1778533200@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-05-11/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T190000
DTEND;TZID=America/New_York:20260513T200000
DTSTAMP:20260404T055244
CREATED:20250320T135132Z
LAST-MODIFIED:20260209T214057Z
UID:10002168-1778698800-1778702400@www.alliancetocure.org
SUMMARY:Eastern Standard Time Zone Monthly Zoom
DESCRIPTION:Are you in Connecticut\, Delaware\, Florida\, Georgia\, Maine\, Maryland\, Massachusetts\, Michigan\, New Hampshire\, New Jersey\, New York\, North Carolina\, Ohio\, Rhode Island\, South Carolina\, Vermont\, Virginia\, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
URL:https://www.alliancetocure.org/event/eastern-standard-time-zone-monthly-zoom-2/2026-05-13/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/03/EST-1-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T110000
DTEND;TZID=America/New_York:20260514T183000
DTSTAMP:20260404T055244
CREATED:20260116T223740Z
LAST-MODIFIED:20260128T185507Z
UID:10002517-1778756400-1778783400@www.alliancetocure.org
SUMMARY:SoCal Golf Tournament
DESCRIPTION:  \n\nTee Off forE a Cure: Join Us for Our 1st Annual Fore! a Cure Golf Scramble!\n11:00 am Check-in/registration and driving range opens. \n\n12:45 pm Putt-o-rama \n1:00 pm Shotgun start \n5:00 pm (approximately) turn in score cards. Join us for a “social hour” at the clubhouse patio\, where we will announce the winners and hand out prizes. Raffle items will be drawn while you are on the course and may be picked up during this time.
URL:https://www.alliancetocure.org/event/socal-golf-tournament/
LOCATION:San Juan Hills Golf Club\, 32120 San Juan Creek Rd\, San Juan Capistrano\, CA\, 92675
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2026/01/Fore-A-Cure-Golf-Tournament-1.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T190000
DTEND;TZID=America/New_York:20260514T200000
DTSTAMP:20260404T055244
CREATED:20250215T183441Z
LAST-MODIFIED:20250215T184250Z
UID:10000916-1778785200-1778788800@www.alliancetocure.org
SUMMARY:Monthly Men's Support Group
DESCRIPTION:Join us for our Men’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \n 
URL:https://www.alliancetocure.org/event/monthly-mens-support-group/2026-05-14/
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2024/08/mens-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T190000
DTEND;TZID=America/New_York:20260514T200000
DTSTAMP:20260404T055244
CREATED:20250809T191944Z
LAST-MODIFIED:20250809T191944Z
UID:10001726-1778785200-1778788800@www.alliancetocure.org
SUMMARY:Monthly Women's Support Group
DESCRIPTION:Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA \nTopics will revolve around CCM and women’s issues. This meeting will be a breakout session alongside our men’s group. \n 
URL:https://www.alliancetocure.org/event/monthly-womens-support-group/2026-05-14/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/08/Bold-red-gold-support-women-facebook-post-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260514T200000
DTEND;TZID=America/New_York:20260514T210000
DTSTAMP:20260404T055244
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000415-1778788800-1778792400@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-05-14/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T160000
DTEND;TZID=America/New_York:20260516T190000
DTSTAMP:20260404T055244
CREATED:20260326T201020Z
LAST-MODIFIED:20260326T201020Z
UID:10002725-1778947200-1778958000@www.alliancetocure.org
SUMMARY:2nd Annual CavMal Stanford Picnic
DESCRIPTION:  \nWhether you’re a Stanford patient or not\, this event is for all individuals and families affected by cavernous malformation. It’s a wonderful opportunity to connect\, share experiences\, and enjoy a beautiful afternoon by the lake. For those who joined last year\, you’ll remember that despite the wind\, the food and company were absolutely epic. If you couldn’t make it last time\, we’d love to see you this year. \nWe can’t wait to see you there. RSVP by April 1. If you have any questions\, please let me know. linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/2nd-annual-cavmal-stanford-picnic/
LOCATION:Shoreline Lakeside Cafe\, 3160 N Shoreline Blvd\, Mountain View\, CA\, 94043\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.alliancetocure.org/wp-content/uploads/2026/03/alliancewebsite-5-x-7-in.jpg
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T120000
DTEND;TZID=America/New_York:20260518T130000
DTSTAMP:20260404T055244
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000154-1779105600-1779109200@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-05-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T200000
DTEND;TZID=America/New_York:20260518T210000
DTSTAMP:20260404T055244
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001374-1779134400-1779138000@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-05-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T200000
DTEND;TZID=America/New_York:20260518T210000
DTSTAMP:20260404T055244
CREATED:20251121T190232Z
LAST-MODIFIED:20260209T220916Z
UID:10002100-1779134400-1779138000@www.alliancetocure.org
SUMMARY:Central Standard Time Zone Zoom
DESCRIPTION:Are you in Alabama\, Arkansas\, Illinois\, Iowa\, Louisiana\, Minnesota\, Mississippi\, Missouri\, Oklahoma\, or Wisconsin? Then\, this monthly Zoom is for YOU! We meet every third Monday of the month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82770270690?pwd=eniehcBHsfsCG1btSXKnd5daCRbaaa.1
URL:https://www.alliancetocure.org/event/central-standard-time-zone-zoom-2/2026-05-18/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/11/CST.png
ORGANIZER;CN="Linda Fuchser":MAILTO:linda@alliancetocure.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T163000
DTEND;TZID=America/New_York:20260519T173000
DTSTAMP:20260404T055244
CREATED:20251126T145447Z
LAST-MODIFIED:20251216T192802Z
UID:10002406-1779208200-1779211800@www.alliancetocure.org
SUMMARY:Monthly Spinal Zoom Group
DESCRIPTION:You’re Invited to Our Monthly Spinal Zoom Support Group \nWe warmly welcome you to join our Spinal Zoom group\, a gathering created for individuals living with a spinal cord cavernous malformation\, whether currently navigating symptoms or adjusting after a lesion removal. \nOur group meets every third Tuesday of the month at 4:30 PM EST\, 3:00 CST\, 1:30 PST on Zoom. This is a safe\, supportive space where patients share their experiences—the ups\, the downs\, and everything in between. If you share these challenges\, we’d be glad to have you with us. \nPlease join us and connect with others who truly understand. \nhttps://us06web.zoom.us/j/88055060667?pwd=dlIxaEQxNXFjeDFhYlFFblRCNTIwQT09
URL:https://www.alliancetocure.org/event/monthly-spinal-zoom-group/2026-05-19/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/11/Spinal.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T190000
DTEND;TZID=America/New_York:20260519T200000
DTSTAMP:20260404T055244
CREATED:20241017T195732Z
LAST-MODIFIED:20260115T182852Z
UID:10002238-1779217200-1779220800@www.alliancetocure.org
SUMMARY:New England Community Monthly Zoom
DESCRIPTION:The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other\, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community\, with the hope that these initial connections will evolve into larger community events over time. Turn this virtual meeting into a real-life moment. This might be the beginning of some fantastic community events! We meet on the third Tuesday every month at 7:00 pm EST. Join us at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09 If you have any questions\, please email me at linda@alliancetocure.org
URL:https://www.alliancetocure.org/event/new-england-community-monthly-zoom/2026-05-19/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2024/10/New-England-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T203000
DTEND;TZID=America/New_York:20260520T213000
DTSTAMP:20260404T055244
CREATED:20260114T020422Z
LAST-MODIFIED:20260117T001325Z
UID:10002461-1779309000-1779312600@www.alliancetocure.org
SUMMARY:Welcome Wednesday
DESCRIPTION:Welcome Wednesday is a new virtual meeting designed especially for new patients who want to learn more about the support and resources the Alliance to Cure Cavernous Malformation provides. During this session\, we’ll explore the tools available on our website\, review educational materials\, highlight the support groups we offer\, and introduce programs that can be helpful throughout the CCM journey. It’s a great opportunity to get oriented\, ask questions\, and connect with the community. \nRegister here: https://us06web.zoom.us/j/82094830433?pwd=ImsDgGeC5yXOPKxJ65lkQGo00hDaLa.1
URL:https://www.alliancetocure.org/event/welcome-wednesday/2026-05-20/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2026/01/Resource-4.png
LOCATION:https://www.alliancetocure.org/event/welcome-wednesday/2026-05-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T200000
DTEND;TZID=America/New_York:20260521T210000
DTSTAMP:20260404T055244
CREATED:20251126T032312Z
LAST-MODIFIED:20251126T032313Z
UID:10000416-1779393600-1779397200@www.alliancetocure.org
SUMMARY:CCM Support Group
DESCRIPTION:Please join us every Thursday evening at 8:00 PM Eastern\, 5:00 PM Pacific for our Zoom Support Group. \n\nRegister in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.alliancetocure.org/event/ccm-support-group-2-2/2026-05-21/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2020/09/Red-Black-Local-Charity-Support-Logo-2.png
LOCATION:https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260522T140000
DTEND;TZID=America/New_York:20260522T150000
DTSTAMP:20260404T055244
CREATED:20251126T033105Z
LAST-MODIFIED:20251126T033106Z
UID:10002327-1779458400-1779462000@www.alliancetocure.org
SUMMARY:Writers Club
DESCRIPTION:Monthly Writers Club Meeting: \nClick here to register for our monthly writers club meeting. \nOur meetings are a casual opportunity to share ideas\, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
URL:https://www.alliancetocure.org/event/writers-club-2-2/2026-05-22/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/06/make-a-writers-club-image-for-a-facebook-event-th.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260525T120000
DTEND;TZID=America/New_York:20260525T130000
DTSTAMP:20260404T055244
CREATED:20250830T033711Z
LAST-MODIFIED:20251126T033538Z
UID:10000155-1779710400-1779714000@www.alliancetocure.org
SUMMARY:Virtual CCM Coffee & Support
DESCRIPTION:Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern\, 9:00 PM Pacific. \nRegister for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN \nReach out to Darla at darla@alliancetocure.org for more information.
URL:https://www.alliancetocure.org/event/virtual-ccm-coffee-chat-2/2026-05-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2021/10/CCM-Coffee-Hour-Monday-Facebook-Post.png
LOCATION:https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260525T200000
DTEND;TZID=America/New_York:20260525T210000
DTSTAMP:20260404T055244
CREATED:20250506T011731Z
LAST-MODIFIED:20250506T012329Z
UID:10001375-1779739200-1779742800@www.alliancetocure.org
SUMMARY:Care Partners' Weekly Supporting the Supporters Meeting
DESCRIPTION:  \nJoin other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
URL:https://www.alliancetocure.org/event/care-partners-weekly-supporting-the-supporters-meeting/2026-05-25/
ATTACH;FMTTYPE=image/png:https://www.alliancetocure.org/wp-content/uploads/2025/05/White-And-Blue-Modern-Volunteers-Needed-Instagram-Post-7-x-5.5-in-1.png
END:VEVENT
END:VCALENDAR