When six-year-old Witten became sick, doctors first suspected the flu. Within hours, however, he was paralyzed and unable to walk, talk, or breathe on his own. An MRI revealed the true cause: a cavernous malformation, a rare condition affecting about 1 in 2,000 people.
Witten’s diagnosis came after a frightening and confusing journey, one his mom, Casey, described as a race against time. Cavernous malformations are clusters of abnormal blood vessels in the brain or spinal cord that can bleed, leading to sudden and severe symptoms.
While the initial prognosis was grim, Witten’s story underscores both the challenges families face in getting the right diagnosis and the importance of awareness of this rare disease.
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