By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
CCM Cure Magazine (Summer 2026)
Check out the newest edition of our magazine, CCM Cure, to learn how the Alliance is driving a cure and improving lives for all affected by cavernous malformation (CCM). Read CCM Cure Magazine (Summer 2026)
MoreConnecting for Better CCM Care
At the Alliance to Cure, ensuring the best possible care and treatment for CCM patients...
MoreDonation match for REC-994
In May of this year, Recursion transferred the REC-994 program to the Alliance. Now, we...
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What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
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Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
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