By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
Awareness Month
June is CCM Awareness Month! Join us in raising awareness and bringing hope to the CCM community. Share your story, visit one of our building light-ups, light up your door with a CCM awareness wreath, or participate in Strides to Cure CCM to...
MoreStrides to Cure CCM
Throughout CCM Awareness Month, we're inviting our community to take part in the 5th Annual...
MorePatient Navigation – Here to Help with CCM Challenges and Insurance Hurdles
Navigating life with cavernous malformation (CCM) can be especially challenging during times of change. Our...
More
What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
More
Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
MoreGet Involved
