By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
We Got You — Become a Steady Supporter
Your Gift Will Be Matched! This July, patients and families affected by cavernous malformation gathered for our Family Weekend. Watch what they said about the community that shows up for them, then see how you can be part of it. Generous donors...
MoreConnecting for Better CCM Care
At the Alliance to Cure, ensuring the best possible care and treatment for CCM patients...
MoreNew Partnership with Atlas Discovery
We’re excited to announce our new partnership with Y Combinator-backed Atlas Discovery, a startup leveraging the...
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What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
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Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
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