Driving a Cure for Cavernous Malformation. Join us.

By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.

Click to read 20 Questions Answered

Strides to Cure CCM

This June—Cavernous Malformation Awareness Month—we invite you to walk, run, bike, swim, or roll 30...

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What is cavernous malformation?

Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. It can lead to strokes, seizures, and other neurological symptoms. There is no treatment besides surgery, and not all patients are candidates for surgery. More than 360,000 people of all ages in the U.S. and E.U. have symptoms caused by CCM.

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Our Story

We were founded in 2002 by a mom looking for answers.

Today, we are an alliance of patients, scientists, clinicians, and industry leaders working to drive a cure and improve lives for all affected by cavernous malformation.

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