Coming Together for Support
Acting Together for a Cure

Alliance to Cure Cavernous Malformation Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research

New Grants Support Organizations Prioritizing Diversity and Diagnosis in their Disease Areas  CHARLOTTESVILLE, VA (November 3, 2021) — Today, the Chan Zuckerberg Initiative (CZI) announced $13 million in funding for 40 patient-led, rare disease advocacy organizations that are working alongside researchers and clinicians...


Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high...


By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

Click to read 20 Questions Answered

Find Support

Get Virtual Support

Connect with others online


Get Local Support

Connect with others in your area


Get Involved

More Ways to Get Involved