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Alliance to Cure Wins Prestigious Rare Disease Organization Award

On this Rare Disease Day, we are honored to announce the National Organization for Rare Disorders (NORD) has awarded the Alliance to Cure Cavernous Malformation this year’s prestigious Abbey S. Meyers Leadership Award. There are 2000 rare disease organizations, 330+ of which qualify...


Recursion Has Opened 13 Sites for REC-994 Trial

February 15, 2023 –Recursion Pharmaceuticals has twelve US sites enrolling cavernous malformation patients in Phase...


By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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