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Attend the 2023 Patient Conference

Please join us on Friday and Saturday at the InterContinental Hotel in Miami, Florida, for our 2023 national family conference. This family conference is held concurrently with the International Scientific Meeting so patients and researchers can share sessions and meals. Registration is open....


Alliance to Cure Wins Prestigious Rare Disease Organization Award

On this Rare Disease Day, we are honored to announce the National Organization for Rare...


By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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