By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
2025 CCM Patient Conference
Join us on November 6th-8th for our 2025 Patient Conference in Atlanta, GA. Thursday, November 6th is optional, but it will be a great afternoon if you're able to attend. Thursday activities will include a unique opportunity to mingle with scientists and medical providers...
MoreFocused ultrasound study published in prestigious Nature Biomedical Engineering
As published in Nature Biomedical Engineering, UVA's focused ultrasound study revealed that focused ultrasound stops...
MoreRockin’ for a Cure
Event date: November 5 Jacksonville, FL Online auction is open at rockin4acure.com Get ready for...
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What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
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Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
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