Current News & Updates

Real Talk: What Actually Helped with CCM Recovery

Current News & Updates, Events & Opportunities

Living with a cerebral cavernous malformation comes with a lot of trial and error; figuring out what helps can take years to piece together. In this community webinar, members of…

CCM Cure Magazine (Summer 2026)

Current News & Updates

Check out the newest edition of our magazine, CCM Cure, to learn how the Alliance is driving a cure and improving lives for all affected by cavernous malformation (CCM). …

Join our CCM Patient Registry

Current News & Updates

Register for the Cavernous Malformation Registry If you or your child is affected by cavernous malformation (CCM), you have the knowledge and power to advance research with your voluntary participation…

Impact Report FY 2024-2025

Current News & Updates

Our Impact Report for FY2024-2025 is out now! Thanks to all those who support our mission and work, we are closer than ever before to better treatments and a cure…

REC-994 Assets Transferred

Current News & Updates

Exactly a year ago, many of you watched with heartbreak as Recursion Pharmaceuticals discontinued its REC-994 Phase 2 clinical trial for cavernous malformation. Our community was devastated, and we shared…

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