Current News & Updates

Impact Report FY 2024-2025

Our Impact Report for FY2024-2025 is out now! Thanks to all those who support our mission and work, we are closer than ever before to better treatments and a cure…

Watch Alliance to Cure Cavernous Malformation CEO Connie Lee’s video announcement here. Exactly a year ago, many of you watched with heartbreak as Recursion Pharmaceuticals discontinued its REC-994 Phase 2…

Study Summary: Is Clot-Busting Stroke Treatment Safe for People with Cavernous Malformation?

Current News & Updates

This is a patient-friendly summary of a research study. The original article can be found here. There are two main types of stroke: Ischemic stroke happens when a blood clot…

Webinar: CCM Research Overview with Dr. Ed Smith

Current News & Updates

Join Dr. Ed Smith, pediatric neurosurgeon and leader of our Center of Excellence at Boston Children’s Hospital, as he explores how the CCM community helps drive research forward. He’ll provide…

Understanding the Research: How Organoids Help Scientists Understand CCM Proteins

Current News & Updates

Researchers are continuing to explore how cerebral cavernous malformations (CCM) develop and behave at a cellular level. In a recent study, scientists used organoids, which are miniature 3D tissues grown…

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