Current News & Updates

Join our CCM Patient Registry

Register for the Cavernous Malformation Registry If you or your child is affected by cavernous malformation (CCM), you have the knowledge and power to advance research with your voluntary participation…

Impact Report FY 2024-2025

Current News & Updates

Our Impact Report for FY2024-2025 is out now! Thanks to all those who support our mission and work, we are closer than ever before to better treatments and a cure…

REC-994 Assets Transferred

Current News & Updates

Exactly a year ago, many of you watched with heartbreak as Recursion Pharmaceuticals discontinued its REC-994 Phase 2 clinical trial for cavernous malformation. Our community was devastated, and we shared…

Study Summary: Is Clot-Busting Stroke Treatment Safe for People with Cavernous Malformation?

Current News & Updates

This is a patient-friendly summary of a research study. The original article can be found here. There are two main types of stroke: Ischemic stroke happens when a blood clot…

Understanding the Research: How Organoids Help Scientists Understand CCM Proteins

Current News & Updates

Researchers are continuing to explore how cerebral cavernous malformations (CCM) develop and behave at a cellular level. In a recent study, scientists used organoids, which are miniature 3D tissues grown…

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