Participate in Research

Researchers have begun to include humans in cavernous malformation studies, which is known as clinical research. These clinical studies can help us understand how the illness affects people over time (natural history studies) or can assign volunteers to groups that receive health-related interventions to compare their effectiveness (clinical trials). These research studies require human participants like you.

Everyone with a cavernous malformation in the brain or spinal cord can join the Alliance to Cure Cavernous Malformation Registry to receive personalized notifications about new research and to add to our understanding of the illness. Registering takes only 20 minutes.

Read through this section of our website to learn about clinical research studies that are underway.


Updated 8.21.23