Events & Opportunities

Please also check our Calendar for a complete view of what’s in store.

If you’re interested in hosting an event, click here.

Webinar – Our Roadmap to a Cure

Join Connie Lee, Psy.D., and Amy Akers, Ph.D., for an exciting update. Amy will present the brand-new CCM Cure Roadmap, our strategy for driving better CCM treatments and a cure…

Webinar- Breathing Underwater: A Caregiver’s Journey

Events & Opportunities

Register today for this month’s webinar with Eileen Benthal, Thursday, November 14th. In honor of Caregiver Appreciation Month she will discuss the journey of being a caregiver in the rare…

Webinar-Advocacy In Action

Events & Opportunities

Join us Thursday, October 24th at 7 pm ET for an insightful webinar, “Advocacy in Action: Navigating Medical, Legislative, and Beyond”, where we’ll explore how to effectively advocate for cavernous…

CCM 101

Patient Participation, Events & Opportunities

CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…

Webinar: Simple Science with Andrew Ressler, Ph.D

Events & Opportunities

Join us Thursday, September 19th, at 7:00 PM Eastern for a webinar with Dr. Andrew Ressler, who will explain some of the basics of CCM science. Please register to attend…

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