Webinar: Coping with Fatigue & CCM
Description: Fatigue is one of the most common symptoms experienced by people living with cerebral cavernous malformation (CCM). In this webinar, Natalie Neale, MD, of UCSF, covers the common causes…
Events & Opportunities
Check out our calendar for support groups, webinars, online informational sessions, and fundraising events.
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Real Talk: What Actually Helped with CCM Recovery
Living with a cerebral cavernous malformation comes with a lot of trial and error; figuring out what helps can take years to piece together. In this community webinar, members of…
Michigan Drive a Cure Golf Scramble
Register Michigan Drive a Cure Golf Scramble Welcome to the 1st Annual Michigan Drive a Cure Golf Scramble! Join us for a fantastic day on the course to support a…
“Heine Strong” Benefit Golf Tournament
The Seventh Annual “Heine Strong” Golf Tournament welcomes golfers of all levels to the 18-hole Robert Trent Jones course at Legends Golf Club in Eureka, MO, on Monday, September 28, 2026. Register…
CCM Patient or Caregiver? Join our Registry.
You have the knowledge and power to advance research for a CCM cure. By joining the Cavernous Malformation Registry, you will be strengthening a critical research tool. Learn more about…
