Events & Opportunities

Check out our calendar for support groups, webinars, online informational sessions, and fundraising events.

Interested in hosting an event? Click below!

Michigan Drive a Cure Golf Scramble

Register Michigan Drive a Cure Golf Scramble Welcome to the 1st Annual Michigan Drive a Cure Golf Scramble! Join us for a fantastic day on the course to support a…

“Heine Strong” Benefit Golf Tournament

Events & Opportunities

The Seventh Annual “Heine Strong” Golf Tournament welcomes golfers of all levels to the 18-hole Robert Trent Jones course at Legends Golf Club in Eureka, MO, on Monday, September 28, 2026. Register…

CCM Patient or Caregiver? Join our Registry.

Current News & Updates, Volunteer Opportunities

You have the knowledge and power to advance research for a CCM cure. By joining the Cavernous Malformation Registry, you will be strengthening a critical research tool. Learn more about…

Watch Past Webinars on our YouTube Channel

Events & Opportunities

Did you know you can catch up on most of our past webinars and many patient conference presentations on our YouTube channel anytime? This is a link to our recorded…

CCM 101

Patient Participation, Events & Opportunities

CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…

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