Alliance to Cure Cavernous Malformation frequently hosts informational webinars and patient conferences. This page includes recordings of these events as well as patient stories. Closed-captioning is available for most videos.
Recent Webinars
Cavernous Malformation and the Aging Brain: October 2022
Recursion’s REC-994 Sycamore Trial: News and Updates – September 2022
What is leaky gut and how can it be healed – August 2022
Make Your Insurance Work for You with Emily Brown from the Patient Advocate Foundation – June 2022
Let’s Talk About Emulsifiers with Shelley Stevens and Darla Clayton – May 2022
Dr. Lawton: Surgical Techniques and Q&A session – April 2022
Dr. Awad Presents a Trial Update and Q&A Session – February 2022
Dr. Ed Smith Talks about Pediatric CCM and Surgical Advances – January 2022
Empowerment through Research Participation – Dr. Connie Lee, Spencer Rosero – October 2021
Recursion Pharmaceutical REC-994 Clinical Trial – Dr. Lisa Boyette – September 2021
CCM Clinical Decision-Making – Dr. Jan-Karl Burkhardt – July 2021
Rapamycin, Atorvastatin Trial, Biomarkers, and More – Dr. Issam Awad – June 2021
PIK3CA Mutation and CCM – Dr. Mark Kahn and Dr. Doug Marchuk – June 2021
Solving the Problem of a Leaky Lesion – Dr. Anuska Andjelkovic-Zochowski – May 2021
CCM Genetics and You – Dr. Connie Lee – April 2021
Understanding and Supporting Children with CCM – Dr. Christine Petranovich – March 2021
CCM Research and COVID Updates – Dr. Issam Awad, University of Chicago – February 2021
Accelerating Our Journey to a Cure – Dr. Connie Lee, Alliance to Cure Cavernous Malformation – December 2020
Atorvastatin Trial Update and Other CCM Research – Dr. Issam Awad, University of Chicago – October 2020
A Patient’s Guide to Imaging – Dr. Blaine Hart and Dr. Marc Mabray, University of New Mexico Health Sciences – September 2020
CCM Updates in the COVID-19 Era – Dr. Issam Awad, University of Chicago – August 2020
Blood Thinners and Cavernous Angioma – Dr. Kelly Flemming, Dr. Mark Ginsberg, and Dr. Miguel Lopez-Ramirez – May 2020
Atorvastatin Trial Update – Dr. Issam Awad – April 2020
Cavernous Angioma and COVID-19 – Dr. Kelly Flemming and Dr. Issam Awad – March 28, 2020
Patient Conferences
United States Patient Conference – November 2019
Dr. Issam Awad – Keynote Presentation
Dr. Min Park – Introduction to Cavernous Angioma
Dr. Atif Zafar – Treating Cavernous Angioma Symptoms
Dr. Ron Alfa – REC-994 and the CCM-Health Index
Dr. Mark Kahn – Recent Microbiome Research Progress
Diane Darcy, RD- CCM-Healthy Diet
Dr. Kimberly Foley – Treating Sleep Apnea
Dr. Amy Akers – 2019 CCM Research Summary
Patient Stories
Cavernous Angioma Awareness Month Finale, June 28th, 2020
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