David Borland – Chair
David is a high-tech leader, having built and led organizations at Intel, co-founded Calxeda, and started the semiconductor and machine learning acceleration teams at Amazon Web Services. As he winds down his focus on high-tech, David is Executive Director and Board Chair for Crossmen Productions, a youth development and performing arts non-profit, an active musician, and an arts education advocate. David’s wife is impacted by CCM2 mutation and has had three significant bleeds over the last 30 years. David is excited to be part of the effort to find a cure.
Rona GOMEL Ashe – vice chair
Rona is a non-profit strategy and marketing consultant. Her daughter Sarah was diagnosed with a cavernous malformation while a freshman at college. Her daughter had a successful surgery and is thriving. Rona has managed projects across different sectors and has supported organizations with strategic planning, marketing strategy, branding, naming, and governance projects. Her professional history includes holding the position of Vice President of Interactive Ventures for HBO, where she was responsible for the nationwide launch of HBO on Demand and the development of HBO’s broadband business. Rona’s non-profit expertise is an invaluable resource for our growing organization. Rona splits her time between Marin County, CA, and Atlanta, Georgia.
Karen Buck – Treasurer
Karen has served on the Alliance to Cure Cavernous Malformation Board of Directors as Treasurer since 2007. She retired from the New York Times after a long career in accounting and Information Technology. Karen lost her 53-year-old husband Mitch in 2010 to a rare cancer that developed at the site of his previous brain surgery for cavernous malformations. Karen’s daughter and grandson have also been diagnosed with multiple cavernous malformations. Her family is affected by a mutation of the CCM3 gene.
Kandance Weems Norris – counsel
Kandance has been involved with Alliance to Cure Cavernous Malformation since 2006, when she attended her first family conference after experiencing a cavernous malformation hemorrhage and related seizures. Her lesion is considered inoperable. This is Kandance’s second stint on our Board, previously serving from 2010 to 2013. Kandance is an attorney, a business law professor, and an executive recruiter with McKinsey and Company. She graduated from Spelman College, Harvard Law, and Harvard Business School. Kandance assists Alliance to Cure Cavernous Malformation with legal matters and advises on health equity initiatives. She lives in Durham, NC with her husband and son.
Christina Campos has served as the administrator of Guadalupe County Hospital, a 10-bed PPS hospital in rural Santa Rosa, New Mexico, for over 19 years. Under her leadership, her hospital was recognized as a Top 20 Community Hospital by the National Rural Health Association in 2019, 2020, and 2021.
She currently serves on the boards of the New Mexico Hospital Association, the NM Hospital Services Corporation, the NM Hospital Equipment Loan Council, the NM Rural Hospital Network, and the NM Mutual Workers Compensation Casualty Company. She previously served as a former American Hospital Association Board Trustee, a former member of the HHS National Advisory Committee for Rural Health and Human Services, and Chairman of the New Mexico COVID Economic Relief Council. She is the President of her community’s local economic development corporation and Main Street Organization.
She is married to Jose Campos, and together they have three adult children and two grandchildren. Joe and two of their daughters are affected by the Common Hispanic Mutation. Christina and her husband also own and operate a family restaurant, Joseph’s Bar & Grill, in Santa Rosa.
Julie is from the hills of Northwest Connecticut. She joined the Board of Directors after learning that her granddaughter was diagnosed with cavernous malformations, becoming the fourth generation diagnosed with the CCM1 mutation. Julia is married with three children and is the CFO of an industrial distribution company, Binding Source LLC. She has a Master’s Degree in Taxation from the University of
Hartford. Her mother was first diagnosed with cerebral cavernous malformations in 1992. Her daughter was diagnosed in 2005 after having a seizure while away at college, and this is when the family first found Alliance to Cure Cavernous Malformation. Along with providing her expertise as a CPA, Julie hosts an annual wine-tasting fundraiser in Torrington, Connecticut.
Tyler is the CEO of The Fairbank Group, LLC, the entity that manages Jiminy Peak Mountain Resort, LLC (Hancock, MA), Cranmore Mountain Resort, LLC (North Conway, N), Ski Bromley, LLC (Peru, Vermont), EOS Ventures, LLC (Hancock, MA), Bullwheel Productions, LLC, SnowGun Technologies and various other endeavors. In addition, Tyler serves as the President of Jiminy Peak, overseeing day-to-day operations. Tyler was diagnosed with a brainstem cavernous malformation which was successfully removed. He is excited to bring his business and non-profit experience to the work of Alliance to Cure Cavernous Malformation. His recovery story is briefly told in the video Road to Recovery. Tyler has also been hosting an annual fundraiser in northwest Massachusetts.
Kimberly Foley, MD
Dr. Foley is a Critical Care Medicine, Internal Medicine, and Pulmonary Disease specialist, practicing in Bermuda and Brooklyn, NY. She has served on the Alliance to Cure Cavernous Malformation Board of Directors since 2019, joining soon after her diagnosis. Dr. Foley has a mutation of the CCM1 gene. Her young daughter has since been tested and has the mutation. Dr. Foley has been advising on clinical and DEI matters.
Kristen Lewis became involved with the Alliance to Cure Cavernous Malformation shortly after she was diagnosed with CCM1 in 2011. This is Kristen’s second time serving on the board and she has made many lifelong friends through her involvement with the Alliance. Having personally undergone both brain and spinal cord surgery, Kristen is not only passionate about finding a cure, but also helping to support and improve the patient experience. Kristen received her law degree from UCLA and currently works as a public interest attorney, with a focus on juvenile law. She is also currently pursuing a Master’s in Public Policy and Administration at Northwestern University. Kristen lives in Portland, Oregon with her husband, two teenagers, and Doodles. Kristen serves on the Board’s Legal & Ethics and Mission & Strategic Vision committees.
Tony Mayer – Past Chair
Tony became involved with the Alliance to Cure Cavernous Malformation in 2012, after his 1-year-old son Dylan had a seizure and was diagnosed with multiple cerebral cavernous malformations. Dylan had surgery at Cincinnati Children’s Hospital to remove a hemorrhaging cavernous malformation from his right frontal lobe. In 2015, another cavernous malformation regrew in the same location and required a second brain surgery. Today, Dylan is doing well, and his other cavernous malformations are being monitored. Tony has a Bachelor of Business Administration (BBA) degree from the University of Saint Francis (IN). He currently works for Procter & Gamble as a Sales Manager and resides in Gallatin, TN. He is married to Cari and, along with Dylan, is the father to Dylan’s twin sister Kendall. In addition to serving as Chair, Tony focuses on fundraising activities. He organized the Dylan Mayer Rock N Bowl (2013 -14) and Cavernous Angioma Night at Great American Ball Park in Cincinnati (2015 – 2019).
Dorothy Robinson is an attorney who has spent her legal career in the higher education and nonprofit world, including serving as Yale University general counsel for some 30 years. She was in private practice before her time at Yale and now in her “quasi-retirement.” Dorothy has served on numerous boards in higher education, research, K-12, and in other types of nonprofits. She also has served on corporate boards in the financial service industry. Dorothy is currently a board member of Swarthmore College in Pennsylvania, and of Oak Spring Garden Foundation in Virginia.
Dorothy’s daughter, a San Francisco artist, was diagnosed with cavernous malformation as a young adult, which led to Dorothy’s enthusiastic involvement with the Alliance to Cure Cavernous Malformation.
Dinah Winchester and her husband Evan joined the Alliance to Cure Cavernous Malformation Board of Directors in 2020 because they want to do everything in their power to find a cure for their young daughter, Linnea, who underwent emergency surgery in 2019 to remove a hemorrhaging cerebral cavernous malformation (CCM) caused by a CCM3 genetic mutation (Dinah and Evan do not have the mutation). Since connecting with Alliance to Cure Cavernous Malformation through a web search, Dinah and Evan have found hope that a cure for Linnea’s condition is within reach; meanwhile, they are following Alliance to Cure Cavernous Malformation’s recommended dietary practices for Linnea and have enrolled Linnea in relevant research studies. Dinah brings to the Board her experience as a former Communications and Advocacy Specialist for Save the Children and a credentialed high school English teacher. She grew up in northern Virginia and attended Northwestern University (B.A.) and Stanford University (M.A.) before moving to Sacramento, California, where she lives with Evan and Linnea.
Last update 11.6.23