Kentucky

Community Alliance

We are very close to forming a Kentucky Community Alliance, and we would love to know if you are interested in joining! Please contact Darla Clayton at darla@alliancetocure.org to let us know.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Darla  Clayton at darla@alliancetocure.org to let her know you are interested in participating.

In the meantime, please request to join our Alliance to Cure Cavernous Malformation Great Lakes/Northern Plains Facebook Group for peer support and more information about local resources.

Centers of Excellence And CCm clinical centers

Alliance to Cure Cavernous Malformation has recognized Cincinnati Children’s Hospital Medical Center as a Center of Excellence. Some adult patients are followed at CCHMC as well.

Cincinnati Children’s Hospital Medical Center

Medical Director: Dr. Sudhakar Vadivelu

Central Scheduling: (513) 636-4726

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Alliance to Cure Cavernous Malformation has recognized the University of Virginia Health System as a CCM Clinical Center.

University of Virginia Health System

Medical Director: Dr. Min Park

Central Scheduling: (434) 924-2735

For a complete list of Center of Excellence faculty, please visit our Center of Excellence page.

upcoming events online and around the country

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