Community Connections

We have a large Facebook group that is a great place to connect with other members.

We also have some smaller, more specific groups, including a group for people affected by brainstem lesions, spinal lesions, and those who are parents of affected children or are caregivers.

You can also join the Alliance to Cure Cavernous Malformation Southeast Facebook group for more information about local resources.

Upcoming Events

If you’re interested in working with us to create a local group to fundraise or for support, reach out to Linda Fuchser at

Our calendar shares both local events and also national opportunities. You will see that we have support groups twice a week and also CCM101 once a month as well as a monthly webinar.