Kentucky

Community Alliance

We are very close to forming a Kentucky Community Alliance, and we would love to know if you are interested in joining! Please contact Darla Clayton at darla@alliancetocure.org to let us know.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Darla  Clayton at darla@alliancetocure.org to let her know you are interested in participating.

In the meantime, please request to join our Alliance to Cure Cavernous Malformation Great Lakes/Northern Plains Facebook Group for peer support and more information about local resources.

Centers of Excellence And CCm clinical centers

Alliance to Cure Cavernous Malformation has recognized Cincinnati Children’s Hospital Medical Center as a Center of Excellence. Some adult patients are followed at CCHMC as well.

Cincinnati Children’s Hospital Medical Center

Medical Director: Dr. Sudhakar Vadivelu

Central Scheduling: (513) 636-4726

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Alliance to Cure Cavernous Malformation has recognized the University of Virginia Health System as a CCM Clinical Center.

University of Virginia Health System

Medical Director: Dr. Min Park

Central Scheduling: (434) 924-2735

For a complete list of Center of Excellence faculty, please visit our Center of Excellence page.

upcoming events online and around the country

Feb 29 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Mar 2 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Mar 4 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Mar 5 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
CCM 101 @ Zoom
Mar 7 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
Mar 7 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Mar 9 @ 8:00 am – 5:00 pm
New Mexico CCM Patient, Family, and Provider Conference @ UNM Domenici Center
8:00 am
Mar 9 @ 10:00 am – 11:00 am
NorCal Monthly Zoom Meeting
10:00 am
NorCal Community Monthly Zoom. Please join us on the second Saturday at 10 AM PST here at this link: https://us06web.zoom.us/meeting/register/tZUtdOmupzkjHdNCtoN8WinwOrImq5p4MhN_
Mar 10 @ 4:00 pm – 5:00 pm
Arizona-Spring Training Baseball Game
4:00 pm
Join us for a fun meet-up Sunday, March 10th at 1:00 pm MST to cheer on the Arizona Diamondbacks and the Los Angeles Dodgers! Tickets are on the lawn, so bring your blankets, a team...
Mar 11 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Mar 11 @ 3:00 pm – 4:00 pm
Arkansas/Missouri Monthly Zoom Meeting
3:00 pm
Arkansas/Missouri Community monthly Zoom meeting at 3 pm CST.  Join us on the second Monday of every month on Zoom. https://us06web.zoom.us/j/89761343205?pwd=Z0tNOCtublI5cmIwRXlkYlpFdFA5dz09
Mar 11 @ 7:00 pm – 8:00 pm
Texas Community Monthly Zoom
7:00 pm
Texas Community Monthly Zoom. Join us on the second Monday of every month at 7 PM CST at this link: https://us06web.zoom.us/j/87125872075?pwd=aGJidkxQK01yK1lVaVJtYVVLOW1XUT09
Mar 12 @ 7:00 pm – 8:00 pm
Michigan Community Monthly Zoom
7:00 pm
Michigan Community Monthly Zoom. Join us the second Tuesday at 7 PM EST of every month here at this link: https://us06web.zoom.us/j/87645427157?pwd=MldUOU9yVUd4c29RaXZ6dTZhMUpCdz09
Mar 13 @ 7:00 pm – 8:00 pm
Greater DC Community Monthly Zoom
7:00 pm
  Greater DC Community monthly Zoom. Join us every second Wednesday of the month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/85872445210?pwd=eVJpUnFZRUt5K3A3anhFLzlERG9SQT09  
Mar 14 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Mar 14 @ 9:00 pm – 10:00 pm
Monthly Parent Group
9:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Mar 18 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Mar 18 @ 7:00 pm – 8:00 pm
Colorado Alliance to Cure Meet Up
7:00 pm
Colorado Community monthly Zoom meeting. Join us every third Monday of the month at 7 PM MST here: https://us06web.zoom.us/j/87585957847?pwd=d3JsZjdUam5XYU83WXJQYTUwVU9aZz09
Mar 19 @ 7:00 pm – 8:00 pm
New England Community Monthly Zoom
7:00 pm
New England Community monthly Zoom. Join us on the third Tuesday at 7 PM EST of every month at this link: https://us06web.zoom.us/j/86328441747?pwd=THE3SkQxMXpROGpwTExOTnNrS0Jodz09
Mar 21 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Mar 25 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Mar 25 @ 6:30 pm – 7:30 pm
Northwest Community Monthly Zoom
6:30 pm
Northwest Community monthly Zoom. Join us every fourth Monday of the month at 6:30 PM PST. Follow the link: https://us06web.zoom.us/j/82937886165?pwd=UUszVEpmNERTQjZMZVhrVzlJUWoyQT09
Mar 28 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 1 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...
Apr 2 @ 7:00 pm – 8:00 pm
Florida Community Monthly Zoom
7:00 pm
Florida Community Monthly Zoom. Join us on the first Tuesday of every month at 7 PM EST. Follow the link: https://us06web.zoom.us/j/88556754593?pwd=STROalZOYk9VVndIbURzdUh1RitJQT09
CCM 101 @ Zoom
Apr 4 @ 7:00 pm – 8:00 pm
CCM 101 @ Zoom
7:00 pm
Join us the first Thursday at 7:00 PM Eastern of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get...
Apr 4 @ 8:00 pm – 9:00 pm
CCM Support Group
8:00 pm
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf–tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the...
Apr 6 @ 9:00 am – 10:00 am
New Mexico Community Monthly Zoom
9:00 am
New Mexico Community monthly Zoom. Join us on the first Saturday of every month at 9 AM MST. Follow the link here: https://us06web.zoom.us/j/88044684492?pwd=N3FmQllLQlllaTBhOEE4bkxkc3RSQT09
Apr 8 @ 12:00 pm – 1:00 pm
Virtual CCM Coffee Chat
12:00 pm
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more...