We are very close to forming a Kentucky Community Alliance, and we would love to know if you are interested in joining! Please contact Darla Clayton at email@example.com to let us know.
Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Darla Clayton at firstname.lastname@example.org to let her know you are interested in participating.
In the meantime, please request to join our Alliance to Cure Cavernous Malformation Great Lakes/Northern Plains Facebook Group for peer support and more information about local resources.
Centers of Excellence And CCm clinical centers
Alliance to Cure Cavernous Malformation has recognized Cincinnati Children’s Hospital Medical Center as a Center of Excellence. Some adult patients are followed at CCHMC as well.
Medical Director: Dr. Sudhakar Vadivelu
Central Scheduling: (513) 636-4726
Alliance to Cure Cavernous Malformation has recognized the University of Virginia Health System as a CCM Clinical Center.
Medical Director: Dr. Min Park
Central Scheduling: (434) 924-2735
For a complete list of Center of Excellence faculty, please visit our Center of Excellence page.