New York

Community Alliance

Tri-State Alliance to Cure Cavernous Malformation Community

Welcome to the Tri-State Alliance to Cure Cavernous Malformation Community. We are a group of Alliance to Cure Cavernous Malformation members and friends who provide mutual support, reach out to the medical community, and organize events. Geographically, our group includes the greater New York City area, northern New Jersey, and Connecticut.

Riley Joachims – Chair

Jessie Siegrist – Vice-Chair

Julie DeMichiel – Treasurer

Mary Garcia Sprague – Events Committee Chair

Lauren Kreager – Outreach and Engagement Committee Chair

To contact us, please email

You can also become a member of our Facebook group to join our group discussion.

Center of Excellence (COE):

The closest Center of Excellence is Boston Children’s Hospital.

Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD

Phone: (617) 919-1379

For more information about our other Centers of Excellence, please visit our information page.

upcoming events

Please see our Calendar for events online and around the country.