Vermont

Community Alliance

We are very close to forming a New England Community Alliance, and we would love to know if you are interested in joining! Please contact Darla Clayton at darla@alliancetocure.org to let us know.

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 4-5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you!

Please contact Darla Clayton at darla@alliancetocure.org to let her know you are interested in participating or if you are interested in holding an event in your community.

In the meantime, please request to join our Northeast Facebook group for peer support and more information about local resources.

Center of Excellence (COE):

Boston Children’s Hospital

Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD

Phone: (617) 919-1379

upcoming events online and around the country

Jun 30 @ 8:00 pm – 9:00 pm
8:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Jun 30 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Jul 4 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jul 5 @ 8:00 pm – 9:00 pm
8:00 pm
Join us to connect with other young people affected by cavernous malformation.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Jul 7 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
4:00 pm
Come for the community, be a part of the CURE! Join us Sunday July 10th, for our largest event of the year! Get a behind the scenes look at the impact of our cavernous malformation...
Jul 11 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jul 14 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Jul 14 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Jul 18 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jul 21 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Jul 25 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Jul 28 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug 1 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Aug 2 @ 8:00 pm – 9:00 pm
8:00 pm
Join us to connect with other young people affected by cavernous malformation.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Aug 4 @ 8:00 pm – 9:00 pm
8:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Aug 4 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug 8 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Aug 11 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug 15 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Aug 18 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug 18 @ 8:00 pm – 9:00 pm
8:00 pm
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Aug 22 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Aug 25 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug 29 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Sep 1 @ 8:00 pm – 9:00 pm
8:00 pm
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Sep 1 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Sep 5 @ 11:00 am – 12:00 pm
11:00 am
Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.
Sep 6 @ 8:00 pm – 9:00 pm
8:00 pm
Join us to connect with other young people affected by cavernous malformation.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Sep 8 @ 8:00 pm – 9:00 pm
8:00 pm
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.