Skip to content
Alliance to Cure Cavernous Malformation - because brains shouldn't bleed
Donate
  • About Us
    • Role of the Alliance – FAQ
    • Mission, Vision, Goals
    • Our Programs
    • Funding Priorities
    • Board of Directors
    • Scientific Advisory Board
    • Medical Advisory Board
    • Our Team
    • Financials
    • Contact Us
  • Patient Registry
  • Legislative Advocacy
    • National Legislation
    • State Legislation
  • International
    • International Organizations
    • Translated Materials
  • For Professionals
    • Clinicians
      • CCM Care Guidelines
      • CCM Centers of Excellence – Criteria and Application
      • Free Genetic Testing Program
      • ICD Code
    • Researchers
      • CCM International Scientific Meeting
      • DNA/Tissue Bank
      • Study Recruitment
  • Upcoming Events
  • Store
  • Newly Diagnosed
    • Cavernous Malformation Fast Facts
    • 20 Cavernous Malformation Questions Answered
    • Incidental and Asymptomatic Cavernous Malformation
    • Questions to Ask Your Doctor
    • Patient Registry
    • Centers of Excellence
    • Community
    • Research
    • CCM Care Guidelines
    • Glossary
  • Cavernous Malformation In Depth
    • Symptoms and Special Topics
      • Hemorrhage
      • Seizure
      • Headache
      • Fatigue
      • Brainstem Lesions
      • Spinal Cord Lesions
      • Developmental Venous Anomaly
      • Central Pain Syndrome
      • Hypertrophic Olivary Degeneration
    • Cavernous Malformation Biology
    • Imaging
    • Surgery
      • Open Brain/Spinal Surgery
      • Minimally Invasive Surgery
      • Minimally Invasive and Non-Invasive Techniques Under Investigation
    • Lifestyle
      • Vitamin D
      • Microbiome/Gut Health
      • Sleep/Sleep Apnea
      • Blood Thinners
      • Under Investigation
    • Pregnancy and Pediatrics
      • Pregnancy with Cavernous Malformation
      • Pediatrics
        • Cavernous Malformation And Children
        • Cavernous Malformation and School
  • Genetics
    • Genetics of Cavernous Malformation
    • CCM3 Syndrome
    • Common Mutations
      • CCM1 Common Hispanic Mutation
      • CCM2 Ashkenazi Mutation
      • CCM2 Exon 2-10 Deletion
    • Genetic Testing
      • Do I Have Sporadic CCM?
      • Why Be Tested?
      • Genetic Testing Labs
      • Free Genetic Testing Program
  • Care & Community
    • Centers of Excellence
    • Free Genetic Testing Program
    • Patient-Expert Certificate Program
    • CCM Family Conference 2023
    • Upcoming Surgery
      • Preparing for Surgery
      • Things for the Hospital
      • Emotional Support
      • Caregiver Information
    • Rehabilitation
      • Types of Rehabilitation
      • Cognitive Rehabilitation
      • Vocational Rehabilitation
    • Community
      • Local Community Connections
      • Online Community
      • Breaking Barriers for Black CCM Health
      • Member Blogs/Books/Stories
      • Events & Opportunities
      • Calendar
      • Volunteer
    • Resources
      • General Resources
      • Disability Resources
      • Financial/Insurance Resources
  • Research & Clinical Trials
    • Participate in Research
      • Cavernous Malformation Patient Registry
      • BVMC Natural History
      • Biomarker Development
      • Alliance to Cure Cavernous Malformation Historical Projects
    • Participate in Trials
      • Clinical Trial Finder
      • REC-994
      • Atorvastatin Trial
      • Trial Readiness Project
      • Clinical Trial FAQ
      • FDA Listening Session
    • Current Research
      • Research You Are Funding
      • Treatments in Development
      • Research Around the World
      • Webinars and Conference Presentation Videos
  • News & Archives
    • Current News & Updates
    • Events & Opportunities
    • Webinars and Videos
    • Our Newsletters
  • Ways to Give
    • Donate Today
    • 2022 End of Year Letter
    • Online Fundraising
    • Host or Help with an Event
    • Donate Gifts of Securities
    • Planned Giving
    • Donate Your Car
    • Support While You Shop or Sell
    • Sponsorships
    • How We Use Your Donations
    • Fundraising Disclosures
  • About Alliance to Cure Cavernous Malformation
    ▼
    • Role of Alliance to Cure Cavernous Malformation – FAQ
    • Mission, Vision, Goals
    • Alliance to Cure Cavernous Malformation Programs
    • Funding Priorities
    • Board of Directors
    • Scientific Advisory Board
    • Medical Advisory Board
    • Our Team
    • Contact Us
  • Patient Registry
  • Legislative Advocacy
    ▼
    • National Legislation
    • State Legislation
  • International
    ▼
    • International Organizations
  • For Professionals
    ▼
    • Clinicians
      ▼
      • CCM Care Guidelines
      • CCM Centers of Excellence – Criteria and Application
      • Free Genetic Testing Program
    • Researchers
      ▼
      • CCM International Scientific Meeting
      • Study Recruitment
  • Upcoming Events
  • Store
  • Newly Diagnosed
    ▼
    • Cavernous Malformation Fast Facts
    • 20 Cavernous Malformation Questions Answered
    • Incidental and Asymptomatic Cavernous Malformation
    • Questions to Ask Your Doctor
    • Centers of Excellence
    • Community
    • Research & Clinical Trials
    • CCM Care Guidelines
    • Glossary
  • Cavernous Malformation In Depth
    ▼
    • Symptoms and Special Topics
      ▼
      • Hemorrhage
      • Seizure
      • Headache
      • Fatigue
      • Brainstem Lesions
      • Spinal Cord Lesions
      • Central Pain Syndrome
      • Hypertrophic Olivary Degeneration
    • Developmental Venous Anomaly
    • Imaging
    • Lifestyle
      ▼
      • Vitamin D
      • Microbiome/Gut Health
      • Sleep/Sleep Apnea
      • Blood Thinners
      • Under Investigation
    • Surgery
      ▼
      • Open Brain/Spinal Surgery
      • Minimally Invasive Surgery
      • Minimally Invasive and Non-Invasive Techniques Under Investigation
      • Radiosurgery
    • Genetic Testing
      ▼
      • Do I Have Sporadic CCM?
      • Why Be Tested?
      • Genetic Testing Labs
      • Free Genetic Testing Program
  • Genetics
    ▼
    • Genetics of Cavernous Malformation
    • Common Mutations
      ▼
      • CCM1 Common Hispanic Mutation
      • CCM2 Ashkenazi Mutation
      • CCM2 Exon 2-10 Deletion
    • CCM3 Syndrome
  • Care & Community
    ▼
    • CCM Family Conference 2023
    • Care
      ▼
      • Centers of Excellence
      • Free Genetic Testing Program
      • Pregnancy and Pediatrics
        ▼
        • Pregnancy with Cavernous Malformation
        • Pediatrics
          ▼
          • Cavernous Malformation And Children
          • Cavernous Malformation and School
      • Upcoming Surgery
        ▼
        • Preparing for Surgery
        • Things for the Hospital
        • Emotional Support
        • Caregiver Information
      • Rehabilitation
        ▼
        • Types of Rehabilitation
        • Cognitive Rehabilitation
        • Vocational Rehabilitation
    • Community
      ▼
      • Local Community Connections
      • Online Community
      • Breaking Barriers for Black CCM Health
      • Member Blogs/Books/Stories
      • Events & Opportunities
      • Calendar
      • Volunteer
    • Resources
      ▼
      • General Resources
      • Disability Resources
      • Financial/Insurance Resources
  • Research & Clinical Trials
    ▼
    • Participate in Research
      ▼
      • Cavernous Malformation Patient Registry
      • BVMC Natural History
      • Biomarker Development
      • Alliance to Cure Cavernous Malformation Historical Projects
    • Participate in Trials
      ▼
      • Clinical Trial Finder
      • REC-994
      • Atorvastatin Trial
      • Trial Readiness Project
      • Clinical Trial FAQ
      • FDA Listening Session
    • Current Research
      ▼
      • Research You Are Funding
      • Treatments in Development
      • Research Around the World
  • News & Archives
    ▼
    • Current News & Updates
    • Events & Opportunities
    • Our Newsletters
  • Ways to Give
    ▼
    • Donate Today
    • 2022 End of Year Letter
    • Online Fundraising
    • Host or Help with an Event
    • How We Use Your Donations
    • Planned Giving
    • Donate Your Car
    • Support While You Shop or Sell
    • Sponsorships
    • Thank You to Our Major Donors!
  • Like Alliance to Cure Cavernous Malformation on Facebook
  • Follow Alliance to Cure Cavernous Malformation on Twitter
  • Follow Alliance to Cure Cavernous Malformation on Instagram
  • Watch the Alliance to Cure Cavernous Malformation YouTube Channel

Virtual CCM Coffee Chat

Calendar
Add to Calendar
  • Add to Timely Calendar
  • Add to Google
  • Add to Outlook
  • Add to Apple Calendar
  • Add to other calendar
  • Export to XML
When:
April 3, 2023 @ 11:00 am – 12:00 pm
2023-04-03T11:00:00-04:00
2023-04-03T12:00:00-04:00

Join us for a casual coffee chat and support!  Reach out to Darla at darla@alliancetocure.org or Lindsay at lindsay@alliancetocure.org for the link to join.

Post navigation

Patient Research Participation Opportunities
Webinar-Pediatric CCM and Surgical Advances

Sign Up for Updates!

Sign up and get news from the Alliance to Cure Cavernous Malformation in your inbox.

Sign Up Now
  • Like Alliance to Cure Cavernous Malformation on Facebook
  • Follow Alliance to Cure Cavernous Malformation on Twitter
  • Follow Alliance to Cure Cavernous Malformation on Instagram
  • Watch the Alliance to Cure Cavernous Malformation YouTube Channel
info@alliancetocure.org

Disclaimer | Privacy Policy
© 2023 Alliance to Cure Cavernous Malformation
This web site is not intended for medical diagnostic use of any kind.

Guidestar Nord Global Genes Rare Diseases Clinical Research Network Patient Advocacy Group
Donate

Help us continue our work.
Your donation is tax deductible!

This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT