PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
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Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register.
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register.
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register.
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. Register here: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0
