Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
12 events found.
Calendar
PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
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Events
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Alliance NextGen Connection Group
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. The group meets every other Wednesday at 8:00 Eastern. Click here to register.
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Alliance NextGen Connection Group
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. The group meets every other Wednesday at 8:00 Eastern. Click here to register.
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CCM Care: Neurology, Seizures, and Hormonal Considerations
Join us Thursday, August 21st at 7:00 Eastern for what is sure to be a fantastic webinar presented by some of the team at the Rochester Mayo Clinic Center of Excellence. Dr. Kelly Flemming and Dr. Kelsey Smith will share updates from the newest guidelines on neurological care for CCM, seizure management, and hormone-related considerations...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
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Virtual CCM Coffee Chat
Virtual EventGrab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Brainstem Group
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
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Writers Club
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
-
Alliance NextGen Connection Group
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. The group meets every other Wednesday at 8:00 Eastern. Click here to register.
