Welcome Wednesday
Virtual Event
Learn, connect, and find support on your CCM journey.
12 events found.
Calendar
PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
Scroll below our calendar to find a link to Subscribe so you’ll always know when we schedule something new!
Events
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Webinar: Adaptive Daily Living
FeaturedJoin Lauren DeValk, MOTR/L, Occupational Therapist at Children’s Hospital Colorado, for a practical and informative session on adaptive equipment and everyday strategies that support greater independence. This webinar will explore tools and techniques that help individuals navigate daily tasks when experiencing decreased mobility, range of motion, coordination, strength, endurance, or dexterity. Lauren will highlight adaptive...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Writers Club
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
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Virtual CCM Coffee & Support
Virtual EventGrab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Swinging For a Cure Golf Tournament
Twin Oaks Golf Course 1425 N Twin Oaks Valley Rd, San Marcos, CA, United StatesTee Off for a Cure: Join Us for Our 4th Annual SoCal Swinging for a Cure Golf Scramble! 11:00 am Check-in/registration and driving range opens. 12:45 pm Putt-o-rama 1:00 pm Shotgun start 5:00 pm (approximately) turn in score cards. Join us for a "social hour" at the clubhouse patio, where we will announce the winners and hand out...
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Brainstem Group
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Millennial Support Group
Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket, that's okay too! This meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group...
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Virtual CCM Coffee & Support
Virtual EventGrab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
