Calendar

PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.

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  • Eastern Standard Time Zone Monthly Zoom

    Eastern Standard Time Zone Monthly Zoom

    Are you in Connecticut, Delaware, Florida, Georgia, Maine, Maryland, Massachusetts, Michigan, New Hampshire, New Jersey, New York, North Carolina, Ohio, Rhode Island, South Carolina, Vermont, Virginia, or West Virginia? Then this monthly Zoom is for YOU! We meet on the second Wednesday of every month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1

  • drawing of 4 women with arms around each other shown from the back. Text is repeated on page

    Monthly Women’s Support Group

    Monthly Women’s Support Group

    Join us for our monthly women’s support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA Topics will revolve around CCM and women's issues. This meeting will be a breakout session alongside our men's group.  

  • support group image of a heart with hands.

    CCM Support Group

    CCM Support Group
    Virtual Event

    Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.

  • CCM Coffee Hour, photo of a latte and pastry

    Virtual CCM Coffee Chat

    Virtual CCM Coffee Chat
    Virtual Event

    Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.

  • Photos of two white women, Dr. Kelly Flemming with dark hair and Dr. Kelsey Smith with blonde hair. Text on image is repeated in post.

    CCM Care: Neurology, Seizures, and Hormonal Considerations

    Join us Thursday, August 21st at 7:00 Eastern for what is sure to be a fantastic webinar presented by some of the team at the Rochester Mayo Clinic Center of Excellence. Dr. Kelly Flemming and Dr. Kelsey Smith will share updates from the newest guidelines on neurological care for CCM, seizure management, and hormone-related considerations...

  • support group image of a heart with hands.

    CCM Support Group

    CCM Support Group
    Virtual Event

    Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.

  • CCM Coffee Hour, photo of a latte and pastry

    Virtual CCM Coffee Chat

    Virtual CCM Coffee Chat
    Virtual Event

    Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.

  • Anatomical illustration of the human brain highlighting the brainstem, with an inset showing a cavernous malformation. Includes an MRI scan displaying a brainstem abnormality. Text reads: “Alliance to Cure Cavernous Malformation – Brainstem Group – Last Thursday of the month.” Designed to promote a support group for individuals affected by brainstem cavernous malformations.

    Brainstem Group

    Brainstem Group

    Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...