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Join Dr. Ed Smith, pediatric neurosurgeon and leader of our Center of Excellence at Boston Children’s Hospital, as he explores how the CCM community helps drive research forward. He’ll provide a brief overview of basic, translational, and clinical research in CCM, explain how studies are conducted and translated into care guidelines, and highlight key research...
Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket, that's okay too! This meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group...
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We'll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
