Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
12 events found.
Calendar
PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
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Events
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Webinar: From Connie’s Kitchen Table to the Frontlines of a Cure
Join us, Thursday, June 26th at 7 pm ET for a special conversation with Alliance to Cure Cavernous Malformation founder Connie Lee as she reflects on the remarkable journey of the alliance, from her kitchen table to leading the drive for CCM research and advocacy. Connie will share the story of how the Alliance began,...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
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Writers Club
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
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Charity Golf Scramble 2025 – June 30 – Windsor, CO
Featuredpelican lakes resort & golf 1620 Pelican Lake Pt, Windsor, CO, United StatesRegistration link: https://alliance-to-cure-cavernous-malformation.perfectgolfevent.com/
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Virtual CCM Coffee Chat
Virtual EventGrab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Alliance NextGen Connection Group
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register.
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CCM 101
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We'll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.
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New Mexico Community Monthly Zoom
Virtual EventThe purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into...
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Virtual CCM Coffee Chat
Virtual EventGrab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
