If you’re looking for after visit summary CCM resources to share with patients, you’re in the right place. This page provides ready-to-use text you can paste directly into an after visit summary (AVS), clinic note, or discharge summary for patients with cerebral cavernous malformation (CCM).
Alliance to Cure Cavernous Malformation supports patients through three core services: free 1:1 patient navigation, a patient research registry, and a patient community. Connecting a patient to these resources at the point of care — through your AVS or clinic summary — is one of the simplest ways to make sure they don’t leave without knowing support exists.
Copy the text below directly into your AVS or clinic summary template:
Cerebral Cavernous Malformation (CCM) Support: Alliance to Cure Cavernous Malformation offers free patient navigation, a research registry, and a patient community. Learn more or connect with a navigator at alliancetocure.org/patient-navigation or help@alliancetocure.org.
Need the shorter version for a limited-character field?
CCM support & navigation: Alliance to Cure Cavernous Malformation — alliancetocure.org/patient-navigation
Prefer a printable or digital resource instead?
If your workflow works better with a handout than an AVS field, you can also download or print our CCM Referral Resource Card.
Updated 7.8.2026
