Primary Care Resources
Primary Care Providers (PCPs) play an essential role in the ongoing care of individuals living with cavernous malformation. This page offers two resources designed to make those visits more effective and informed, for both patients and their clinicians.
Conversation Guide for Patients
Preparing for your appointment can help you make the most of your time with your doctor. Our guide – Prepare for your Primary Care Appointment, is designed to help you get ready in advance, organizing your thoughts, outlining symptoms, and noting your questions and concerns.
[Download the Conversation Guide]
Information for Primary Care Providers
Primary care providers are often the first point of contact for patients with cavernous malformation. Our Primary Care Provider Resource summarizes the most relevant updates from the Clinical Care Guidelines to help PCPs recognize symptoms, coordinate care, and support patients confidently.
We encourage patients to print this resource and bring it to their next appointment to share with their doctor, or providers can download a copy directly.
[Download the PCP Resource]
Both documents are available to download and share, helping patients and providers work together for informed, coordinated care.
