21st Annual International CCM Scientific Meeting
and
1st Annual CCM CENTER OF EXCELLENCE AND CLINICAL CENTER FACULTY MEETING
The Ritz-Carlton Hotel, Atlanta, Georgia, USA
Thursday and Friday, November 6-7, 2025
CCM Scientific Meeting
The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Alliance to Cure Cavernous Malformation hosts this annual meeting to facilitate scientific progress and collaborations.
For domestic attendees, the 2025 meeting will be in-person only:
Thursday, November 6th: A day of plenary beginning at 8:30 am, followed by a poster session/reception and a special dinner.
Friday, November 7th: A keynote speech followed by a plenary session through 4:00 pm for scientists and a concurrent CCM Clinical Center and Center of Excellence faculty meeting
CCM Scientific Meeting Registration – All In-Person
This year, international (outside of the US) attendees are offered a virtual attendance option. You may submit abstracts for virtual presentation or an unattended poster (see below).
CCM Scientific Meeting Registration – Virtual (International Only)
CCM Center of Excellence and Clinical Center Faculty Meeting
For the first time, CCM Center of Excellence and Clinical Center faculty are invited to a concurrent meeting.
Thursday, November 6th (optional): This is a day of the scientific meeting plenary, beginning at 8:30 a.m., followed by a poster session/reception and a special dinner.
Friday, November 7th: A keynote speech will be followed by a joint session with patients to hear about the clinical care guidelines update and discuss patient/clinician communication. Then, there will be an afternoon work session to discuss clinic best practices/metrics and inter-clinic communication.
You may register for one or both days. Because of its highly interactive nature, this meeting is in-person only. We strongly encourage each Center to send a representative.
CCM Center of Excellence and Clinical Center Faculty Meeting
Scientific Meeting Abstracts
Deadline
All abstract submitters have been notified of their status. If you have not received notification, please contact Angela Glading at angela.glading@alliancetocure.org.
Abstract Guidelines
Abstracts should describe presentations of new, unpublished research data or data published after November 2024. Presentation topics may describe any project field related to CCM research, including, but not limited to, drug studies, genetics, animal models, proteomics, vascular biology, signaling, clinical studies, surgery, imaging, etc.
Please limit your abstract to 500 words. Your submission may include images. Please include a presentation title and a listing of contributing authors (not included in the word count).
Please include the intended presenter’s name, affiliation, professional level (student, postdoc, etc.), and email address.
Who may attend?
Scientific Meeting
Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), clinical practice, drug development, and CCM advocacy (e.g., Alliance to Cure Cavernous Malformation Board members). Officials from the National Institutes of Health, the Food and Drug Administration, and international funding agencies are also encouraged to attend. Final attendance eligibility determinations are subject to a decision by the Organizing Committee. To request registration eligibility, please contact Connie Lee at clee@alliancetocure.org.
Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) cannot attend scientific sessions.
CCM Clinical Center and Center of Excellence Meeting
Any faculty of current or prospective CCM Centers of Excellence or CCM Clinical Centers is invited to attend. The morning session will include attendees of the Patient Conference.
More Information
We email announcements, including registration links, to our current scientific mailing list. If you have not received regular correspondence from us about poster sessions or this meeting, please write clee@alliancetocure.org to be added to the distribution list.
In 2024, we hosted a meeting in Toronto, Canada, where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM. View 2024 Agenda
For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas. These agendas exemplify the broad range of researchers and projects from distinct fields, all contributing to a complete understanding of CCM disease biology.
Updated 6.23.25
