CCM International Scientific Meeting

19th Anniversary Alliance to Cure Cavernous Malformation

International CCM Scientific Meeting

InterContinental Miami
Miami, Florida

Thursday and Friday, July 6-7, 2023

The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Alliance to Cure Cavernous Malformation hosts this annual meeting to facilitate scientific progress and collaborations.

Our meeting will take place on July 6 and 7 at the InterContinental Hotel in Miami, Florida. City-view rooms are $165/night, and hotel reservation information can be found hereThe meeting has been moved to the summer so we can incorporate a children’s program into the family conference.

 Registration will open soon.  Please note that our early registration discount ends on May 1st. See below for information on who may attend and how to receive the registration link.

The 2023 meeting will be in-person only:

Thursday, July 6th: A day of plenary beginning at 8:30 am, followed by a poster session/reception and a special dinner.
Friday, July 7th: A keynote speech by Dr. Chris Gibson, CEO of Recursion Pharmaceuticals, which will be joined by patient conference attendees, followed by plenary through 3 pm.  Stay tuned for additional opportunities to gather or to enroll clinical research participants.

Complete Agenda to Follow

There are no plans for virtual attendance at this time. As in previous years, only the keynote address will be recorded.



Given the shorter time between our 2022 and 2023 meetings, we are extending the abstract deadline to the latest possible date. Abstracts are due to by May 26th in MS Word file format.

If your travel plans are contingent upon acceptance of a plenary or poster presentation, please submit your abstract a week before you plan to book your travel so we may offer a preliminary determination.

Abstract Guidelines

Abstracts should describe presentations of new, unpublished research data or data published after November 2022. Presentation topics may describe any project field related to CCM research, including, but not limited to, drug studies, genetics, animal models, proteomics, vascular biology, signaling, clinical studies, surgery, imaging, etc.

Please limit your abstract to 500 words. Your submission may include images. Please include a presentation title and a listing of contributing authors.

Please include the intended presenter’s name, affiliation, professional level (student, postdoc, etc.), and email address.

Who may attend?

Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), clinical practice, drug development, and CCM advocacy (e.g., Alliance to Cure Cavernous Malformation Board members). Officials from the National Institutes of Health and Food and Drug Administration are also encouraged to attend. Upon registration, attendees will complete an eligibility questionnaire. Final attendance eligibility determinations are subject to a decision by the Organizing Committee. To request registration information, please contact Connie Lee at

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) are not allowed to attend scientific sessions.


Your registration will be refunded if our meeting is canceled because of the pandemic.  We will have masks and COVID antigen tests available. We will keep you apprised of any changes with your safety and the safety of the patients and families in mind.

More Information

We send announcements, including registration links, via email to our current scientific mailing list. If you have not received regular correspondence from us about poster sessions or this meeting, please write to be added to the distribution list.

In 2022, we hosted a meeting where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM.  View 2022 Agenda

For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas that exemplify the broad range of researchers and projects from distinct fields, all of which contribute to a complete understanding of CCM disease biology.

For questions about the program, please contact Connie Lee at

Updated 1/12/23