CCM International Scientific Meeting

18th Anniversary Alliance to Cure Cavernous Malformation

International CCM Scientific Meeting

Washington Duke Hotel
Durham, North Carolina

Thursday and Friday, November 17 & 18, 2022

The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Alliance to Cure Cavernous Malformation hosts this annual meeting to facilitate scientific progress and collaborations.

Our meeting will take place on November 17 and 18 at the Washington Duke Hotel in Durham, North Carolina. Rooms are $199/night, and hotel reservation information can be found here. Our room block is selling out. Please book your reservation as soon as possible.

Registration is open. In recognition of the increased cost of travel, we have frozen registration fees at 2017 levels. Please note that our early registration discount ends on September 22nd. See below for information on who may attend and how to receive the registration link.

The 2022 meeting will return to our in-person format:

Thursday, Nov 17th: A day of plenary beginning at 8:30 am, followed by a poster session/reception and a special dinner.
Friday, Nov 18th: A keynote speech marking the 20th Anniversary of Alliance to Cure Cavernous Malformation by Dr. Douglas Marchuk, incoming chair of the Alliance to Cure Cavernous Malformation Scientific Advisory Board, which will be joined by patient conference attendees, followed by plenary through 3 pm.

Complete Agenda

There are no plans for virtual attendance at this time. As in previous years, the meeting will not be recorded.

Who may attend?

Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), clinical practice, drug development, and CCM advocacy (e.g., Alliance to Cure Cavernous Malformation board members). Officials from the National Institutes of Health and Food and Drug Administration are also encouraged to attend. Upon registration, attendees will complete an eligibility questionnaire. Final attendance eligibility determinations are subject to a decision by the Organizing Committee. To request registration information, please contact Connie Lee at

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) are not allowed to attend scientific sessions.

2018 science meeting attendees
2018 Scientific Meeting Attendees


Your registration will be refunded if our meeting is canceled because of the pandemic. To attend, we ask that you bring proof of vaccination and plan to wear a mask. We will have masks and COVID antigen tests available. We will keep you apprised of any changes, with your safety and the safety of the patients who will attend the keynote and Friday lunch in mind.

More Information

We send announcements, including registration links, via email to our current scientific mailing list. If you have not received regular correspondence from us about poster sessions or this meeting, please write to be added to the distribution list.

In 2021, we hosted a virtual meeting where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM.  View 2021 Agenda

For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas that exemplify the broad range of researchers and projects from distinct fields, all of which contribute to a complete understanding of CCM disease biology.

For questions about the program, please contact Connie Lee at

hold the date for 2023

Our 2023 meeting will move to the summer!  We are meeting July 6-7 in Miami. More details to follow.

Updated 10/18/22