Should I See a Genetics Professional?
- If you have any questions or concerns about genetic testing for familial CCM, we encourage you to speak with a healthcare provider.
- Your local provider (neurologist, neurosurgeon, or primary care doctor) may refer you to medical genetics.
- A genetics professional can help you understand the chances that you have familial CCM, coordinate genetic testing, and help you understand your results and next steps.
Find a Genetics Professional
- Find a local genetic counselor
- Contact a CCM Center of Excellence or Clinical Center
- Explore telemedicine genetic counseling options: InformedDNA; Genome Medical
- Email help@alliancetocure.org to ask our patient navigator to help identify a provider.
Updated 2.18.26
