CCM International Scientific and Clinical Care Meetings

21st Annual International CCM Scientific Meeting

and

1st Annual CCM CENTER OF EXCELLENCE AND CLINICAL CENTER FACULTY MEETING

The Ritz-Carlton Hotel, Atlanta, Georgia, USA
Thursday and Friday, November 6-7, 2025

CCM Scientific Meeting

The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Alliance to Cure Cavernous Malformation hosts this annual meeting to facilitate scientific progress and collaborations.

Hotel Reservation Information

The 2025 meeting will be in-person only for domestic US attendees:

Thursday, November 6th: A day of plenary beginning at 8:30 am, followed by a poster session/reception and a special dinner.
Friday, November 7th: A keynote speech followed by a plenary session through 3:30 pm for scientists and a concurrent CCM Clinical Center and Center of Excellence faculty meeting

CCM Scientific Meeting Registration – All In-Person

This year, international (outside of US) attendees are offered a virtual attendance option. You may submit abstracts for virtual presentation or an unattended poster (see below).

The early registration deadline is July 7th, 2025.

CCM Scientific Meeting Registration – Virtual (International Only)

CCM Center of Excellence and Clinical Center Faculty Meeting

For the first time, CCM Center of Excellence and Clinical Center faculty are invited to a concurrent meeting.

Thursday, November 6th (optional): A day of scientific meeting plenary beginning at 8:30 am, followed by a poster session/reception and a special dinner.
Friday, November 7th: A keynote speech followed by a joint session with patients to hear about the clinical care guidelines update and discuss patient/clinician communication, and an afternoon work session discussing clinic best practices/metrics and inter-clinic communication.

You may register for one or both days. Because of its highly interactive nature, this meeting is in-person only.  We strongly encourage each Center to send a representative.

CCM Center of Excellence and Clinical Center Faculty Meeting

The early registration deadline is July 7th, 2025.

Scientific Meeting Abstracts

Deadline

Abstracts are due to angela.glading@alliancetocure.org with a copy to clee@alliancetocure.org by July 7th, 2025, in MS Word file format.

If your travel plans are contingent upon acceptance of a plenary or poster presentation, please submit your abstract a week before you plan to book your travel so we may offer a preliminary determination.

Abstract Guidelines

Abstracts should describe presentations of new, unpublished research data or data published after November 2024. Presentation topics may describe any project field related to CCM research, including, but not limited to, drug studies, genetics, animal models, proteomics, vascular biology, signaling, clinical studies, surgery, imaging, etc.

Please limit your abstract to 500 words. Your submission may include images. Please include a presentation title and a listing of contributing authors (not included in the word count).

Please include the intended presenter’s name, affiliation, professional level (student, postdoc, etc.), and email address.

Who may attend?

Scientific Meeting

Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), clinical practice, drug development, and CCM advocacy (e.g., Alliance to Cure Cavernous Malformation Board members). Officials from the National Institutes of Health, the Food and Drug Administration, and international funding agencies are also encouraged to attend. Final attendance eligibility determinations are subject to a decision by the Organizing Committee. To request registration eligibility, please contact Connie Lee at clee@alliancetocure.org.

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) cannot attend scientific sessions.

CCM Clinical Center and Center of Excellence Meeting

Any faculty of current or prospective CCM Centers of Excellence or CCM Clinical Centers is invited to attend. The morning session will include attends of the Patient Conference.

More Information

We email announcements, including registration links, to our current scientific mailing list. If you have not received regular correspondence from us about poster sessions or this meeting, please write clee@alliancetocure.org to be added to the distribution list.

In 2024, we hosted a meeting in Toronto, Canada, where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM. View 2024 Agenda

For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas. These agendas exemplify the broad range of researchers and projects from distinct fields, all contributing to a complete understanding of CCM disease biology.

 

Updated 6.23.25