Alliance to Cure Cavernous Malformation is excited to announce a new addition to its growing network of Centers of Excellence. The organization has recognized Penn Medicine/The Hospital of the University of Pennsylvania as a CCM Center of Excellence for their outstanding medical care and cutting-edge research.
The Center of Excellence is led by neurosurgeon and Medical Director Dr. Jan-Karl Burkhardt. The full faculty list, as well as a summary of Penn’s research program, can be found here: https://www.alliancetocure.org/penn-medicine/. More information about Penn Medicine’s cerebral cavernous malformation (CCM) program can be found on their website: https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/neurosurgery/neurovascular-surgery/cavernous-malformation-center.
“We are excited to recognize Penn Medicine as the first CCM Center of Excellence, providing our patients in the Mid-Atlantic with this rare disease an option for expert care closer to home. We applaud Dr. Burkhardt for his work in raising the visibility of the condition within his institution and for his passion to serve patients,” commented Connie Lee, President and CEO of Alliance to Cure Cavernous Malformation.
Alliance to Cure Cavernous Malformation Clinical Centers and Centers of Excellence are recognized by Alliance to Cure Cavernous Malformation as providing high-quality interdisciplinary care for both sporadic and familial cerebral cavernous malformation patients. The standard of care at the Centers is expected to meet or exceed the consensus guidelines recognized by the Alliance to Cure Cavernous Malformation Scientific Advisory Board.