Community Alliance
Welcome to the Northwest Alliance to Cure Cavernous Malformation Community. We are a group of Alliance to Cure Cavernous Malformation members and friends who provide mutual support, reach out to the medical community, and organize events. Geographically, our group includes Oregon and Washington state. We also have affiliate members in Idaho.
Angela Johnson – Chair
Jennifer Roney – Vice-Chair
Amy Clarke – Treasurer
Kathy Johnson – Events Committee Chair
Noel Beeler – Outreach and Engagement Committee Chair
To contact us, please email nwangioma@gmail.com.
You can also become a member of our Facebook group to join our group discussion.
Centers of Excellence
The nearest CCM Center of Excellence is:
University of California San Francisco
Central Scheduling: (415) 353-2529
Medical Directors: Dr. Adib Abla and Dr. Nerissa Ko
upcoming events
Please see our Calendar for a full listing of events online and around the country.
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