Phone: (415) 353-2529
Address: 505 Parnassus Avenue, San Francisco CA 94143
Number of Outpatient CCM appointments annually: ~60
Number of Inpatient patient days annually: ~80
Number of CCM research publications 2013-2018: 12
Patients may also be seen at UCSF Benioff Children’s Hospital and Zuckerberg San Francisco General Hospital
Faculty
Medical Co-Director: Dr. Helen Kim
Medical Co-Director: Dr. Nerissa Ko
Nurse Coordinator: Sharon Hoang, RN
Epileptologist: Dr. Tina Shih
Geneticist: Dr. Joseph Shieh
Neuroradiologist: Dr. Steven Hetts
Pediatric Neurosurgery: Dr. Nalin Gupta
Pediatric Neurology: Dr. Heather Fullerton
Pediatric Neurology: Dr. Christine Fox
UCSF Cavernous Malformation Program
Second Opinion Program
While UCSF does not have a designated second opinion clinic, they often see CCM patients for second opinion consultation and welcome patients and families to call (415) 353-2529 for information. Please ask for Sharon Hoang, RN, for assistance.
Summary of UC San Francisco Research Program
At UCSF, we have an active clinical research program in cerebrovascular malformations funded by NIH grants to Dr. Helen Kim through the UCSF Center for Cerebrovascular Research (CCR). Three of these grants are focused on CCM, characterizing rates of clinical outcomes and identifying factors associated with disease severity and progression in patients with CCM. Understanding the natural history, clinical variability, and factors that modify risk in patients with CCM is important for future targeted drug clinical trials that will ultimately benefit patients. We see over 60 CCM cases (both sporadic and familial) annually at UCSF for evaluation and management, primarily through vascular neurosurgery (Adib Abla, MD) and vascular neurology (Nerissa Ko, MD, MS) services. Both Drs. Abla and Ko are close clinical collaborators as well as co-investigators or consultants on several of Dr. Kim’s grants.
Overnight Accommodations
For information about hotels, motels and short-term apartment rentals, please visit the campus Housing Office website.
Please make your lodging arrangements as far in advance as possible because San Francisco hotels tend to be busy.
If you have questions, call our Referral Center at (888) 689-UCSF or send us an email to referral.center@ucsfmedctr.org.
See the UCSF Benioff Children’s Hospital website for information about accommodations for the parents and family members of pediatric patients.
Updated 08.09.2023