Contact Us

Please Read Before Emailing

Alliance to Cure Cavernous Malformation is a patient support organization.  We can not provide medical advice or recommend physicians outside of our Centers of Excellence. Before emailing for information about cavernous malformations, please read the information in the Newly Diagnosed and Cavernous Angioma In-Depth sections of our website.

Our Online Community and Community Alliances offer support services. If it all possible, please try these avenues before emailing – you will receive a faster response.

We read emailed messages at least weekly. We can not respond to requests for general information about cavernous malformations – please be very specific in your question.
Thank you.

General Email:

Patient Registry:

Fax:  +1-757-623-0616

Mailing Address:
Alliance to Cure Cavernous Malformation
977 Seminole Trail Box 367
Charlottesville VA 22901


Updated  2.03.21