CCM Family Conference 2023

We are meeting in person with our children!

The InterContinental Hotel in Miami Florida at night with the text Alliance to Cure Cavernous Malformation Family Conference, Miami Florida, July 7th-8th, 2023.

Are you or a loved one affected by cavernous malformation? Do you want to learn more about the latest advancements in research and treatment options? If so, you won’t want to miss the Alliance to Cure Cavernous Malformation patient conference in Miami, Florida, on July 7th and 8th.

This conference is a unique opportunity for patients and their families to connect with top scientists and doctors in cavernous malformation research.

Program Highlights


Among our many speakers, you’ll have the chance to hear from:

  • Dr. Kelly Flemming and Dr. Gary Steinberg, two renowned experts actively working to cure this disease, who will answer your questions;
  • Keynote Speaker Recursion CEO Dr. Chris Gibson;
  • Dr. Ed Smith, Chair of the Alliance to Cure Medical Advisory Board, will discuss what you should expect from your care team.
  • Dr. Jacques Morcos, University of Miami Neurosurgery Chair and incoming American Association of Neurological Surgeons President.

You’ll have breaks and lunch with our scientists, who are happy to share their work with you.

In addition to hearing from these experts, you’ll connect with other patients and family members affected by cavernous malformation, a valuable experience as you share your stories, ask questions, and find support from others who understand what you’re going through. This is a family conference, so there will be activities for children to meet and connect and a teen and young adult program.

The Alliance to Cure Cavernous Malformation patient conference is a must-attend event for anyone affected by this disease. You’ll learn about the latest research, hear from top experts, and connect with others who share your experiences. We hope to see you there!

Registration and Hotel Reservations

Registration is open. Please note the late registration date. Visit our Registration Page for more information. Registration includes breakfast and lunch on Friday and Saturday.

Registration is $80 for adults and $60 for children. Please register by June 16th.

Late registration (after June 16th) is $100 for adults and $80 for children.

Please find the hotel information here.  Hotel reservations must be made by June 12th to receive the discounted room rate.

The discounted rate is available as early as July 5th if your family wants to spend time in the Miami area before the meeting.

Limited financial assistance with lodging and registration may become available. Please check back here for updates.


Updated 5.30.23