Community Alliance

Welcome to the Northwest Alliance to Cure Cavernous Malformation Community. We are a group of Alliance to Cure Cavernous Malformation members and friends who provide mutual support, reach out to the medical community, and organize events. Geographically, our group includes Oregon and Washington state. We also have affiliate members in Idaho.

Angela Johnson – Chair

Jennifer Roney – Vice-Chair

Amy Clarke – Treasurer

Kathy Johnson – Events Committee Chair

Noel Beeler – Outreach and Engagement Committee Chair

To contact us, please email nwangioma@gmail.com.

You can also become a member of our Facebook group to join our group discussion.

Centers of Excellence

The nearest CCM Center of Excellence is:

University of California San Francisco

Central Scheduling: (415) 353-2529

Medical Directors: Dr. Adib Abla and Dr. Nerissa Ko

upcoming events

Please see our Calendar for a full listing of events online and around the country.