March Newsletter Available
We have a packed issue for you, including new research, our patient registry news, research we’re funding, upcoming events, and more. Read it here.
Current News & Updates
Alliance to Cure Cavernous Malformation Recognizes Beth Israel Deaconess Medical Center as a CCM Clinical Center
Beth Israel Deaconess Medical Center has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. A cavernous malformation, also known as a cerebral cavernous angioma or cavernoma, is a mulberry-shaped collection of abnormal blood vessels with thin, leaky walls, most often found…
Alliance to Cure Wins Prestigious Rare Disease Organization Award
On this Rare Disease Day, we are honored to announce the National Organization for Rare Disorders (NORD) has awarded the Alliance to Cure Cavernous Malformation this year’s prestigious Abbey S. Meyers Leadership Award. There are 2000 rare disease organizations, 330+ of which qualify to be members of NORD. NORD recognizes one organization each year for…
February Volunteer Spotlight
Please join us in thanking our incredible card-writing team: Alexa Horeff, Lauri Smalley, Jaclyn Tobin, and Amy Chick. Our dedicated card writers share their skills and their lovely handwriting with us by writing cards to thank our donors for their support. Thank you for all you do for our community.
Learn More About Clinical Trials
Learn more about how clinical trials work, check out some Myths vs Facts and get your questions answered with our FAQs. Still have more questions? Reach out at ClinicalTrials@AllianceToCure.org