Current News & Updates

CCM Patient Story Featured in HuffPost

A Dad Tried To Bully Me Into Giving My Seat To His Kid. Here’s What Happened When I Said No. “I’ve realized that my right to advocate for myself isn’t…

KRQE News 13 Features CCM in New Mexico

Current News & Updates

Cavernous malformation was recently featured on KRQE News 13 in New Mexico during a Patient Conference hosted by University of New Mexico. The segment helped raise critical awareness about this…

Webinar – From Connie’s Kitchen Table to the Frontline of a Cure

Current News & Updates

Join us for a special conversation with Alliance to Cure Cavernous Malformation founder Connie Lee as she reflects on the remarkable journey of the alliance, from her kitchen table to…

Statement from Recursion regarding REC-994 Trial

Current News & Updates

Recursion’s message to our patients regarding the discontinuation of the REC-994 trial: We have difficult news to share today. Recursion has made the decision to discontinue the SYCAMORE trial of…

Texas Children’s Becomes First Hospital in Texas with Cavernous Malformation Clinical Center Designation

Current News & Updates

The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at…

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