Read Alliance to Cure’s Spring 2024 Newsletter Alliance to Cure’s Spring Newsletter highlights our progress towards better treatments and a cure for cavernous malformation. Read the newsletter to learn about early plans for a focused ultrasound safety trial for cavernous malformation patients, our ground-breaking preclinical treatment testing program, and more!
The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at any age, attended a ceremony on April 10 in Houston recognizing Texas Children’s Hospital as the first Clinical Center for cavernous malformation in Texas. Clinical…
ABC Australia featured us in a news story about CCM1 patient Jeffrey Passlow, a patient-expert and member of our online support group. We are grateful for Jeffrey’s commitment to supporting fellow patients. Learn more about our support groups.
“Biscochito,” our first children’s book, is a delightful tale written by the talented author Aditi Kantipuly and brought to life through the enchanting illustrations of Luz Adriana Manozca. This heartwarming children’s story is told by two special individuals, Colton Arnett and Atiana Tenorio, who are the voices behind the book and patients of cavernous malformation…
September 7th, 2024 Be a Host! Becoming a host site for our “Rhythms of Hope: Concerts for Cavernous Malformation” event presents a unique opportunity to make a meaningful impact. By opening your doors to this inspiring event, you’re not only providing a platform for talented musicians to share their artistry but also fostering a sense…
