CCM Cure Magazine (Summer 2026)
Check out the newest edition of our magazine, CCM Cure, to learn how the Alliance is driving a cure and improving lives for all affected by cavernous malformation (CCM). …
Patient Participation
Connecting for Better CCM Care
At the Alliance to Cure, ensuring the best possible care and treatment for CCM patients is one of our top priorities. We understand the challenges of a rare disease diagnosis,…
Donation match for REC-994
In May of this year, Recursion transferred the REC-994 program to the Alliance. Now, we have an exciting opportunity to delve deeper into the data from the trials and better…
Awareness Month
June is CCM Awareness Month! Join us in any number of opportunities to bring awareness, show your support, and help raise funds to drive critical research, support, and hope. Here…
Patient Navigation – Here to Help with CCM Challenges and Insurance Hurdles
Navigating life with cavernous malformation (CCM) can be especially challenging during times of change. Our free Patient Navigation service offers personalized support to help individuals and families affected by CCM…
