2025 CCM Patient Conference
Join us on November 6th-8th for our 2025 Patient Conference in Atlanta, GA. Thursday, November 6th is optional, but it will be a great afternoon if you’re able to attend. Thursday…
Patient Participation
Focused ultrasound study published in prestigious Nature Biomedical Engineering
As published in Nature Biomedical Engineering on Tuesday, UVA’s focused ultrasound study revealed that focused ultrasound stops the growth of cavernous malformations in mouse models. We first heard this exciting…
Newly Published CCM Clinical Care Consensus Guidelines
Updated CCM Care Guidelines are now available to all doctors and patients! New recommendations include guidance on diagnosis, spinal cavernous malformations, lifestyle, hormones, and pediatric surgical considerations. Alliance to Cure’s…
The CCM Program Project Grant: An NIH-funded research success story
By Douglas Marchuk, Chair, Alliance to Cure Cavernous Malformation Scientific Advisory Board The National Institutes of Health (NIH) occasionally provides funding for a team of researchers, often from different institutions,…
