Events & Opportunities

For support groups, webinars, and ongoing virtual events, see our Calendar.

If you’re interested in hosting an event, click here.

Webinar- Breathing Underwater: A Caregiver’s Journey

Register today for this month’s webinar with Eileen Benthal, Thursday, November 14th. In honor of Caregiver Appreciation Month she will discuss the journey of being a caregiver in the rare…

CCM 101

Patient Participation, Events & Opportunities

CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…

Webinar: Simple Science with Andrew Ressler, Ph.D

Events & Opportunities

Join us Thursday, September 19th, at 7:00 PM Eastern for a webinar with Dr. Andrew Ressler, who will explain some of the basics of CCM science. Please register to attend…

August Volunteer of the Month: David Meyer

Events & Opportunities

We’re excited to spotlight our incredible Volunteer of the Month, David Meyer! David generously volunteered his time and talent as the photographer for our International Science Meeting and Patient Conference…

June Volunteer of the Month

Events & Opportunities

We are incredibly grateful to have Candelaria assist us with our special events; her dedication is truly remarkable. Whether it’s arranging taxi services, delivering coffee, or inflating countless balloons before…

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