Please also check our Calendar for a complete view of what’s in store.
If you’re interested in hosting an event, click here.
Join Our Malibu Walk/Fun Run to support the Alliance to Cure Cavernous Malformation! Together, we can make a profound difference in the lives of those affected by cavernous malformation. Let’s come together as a community and show our support for the Alliance to Cure Cavernous Malformation. Enjoy the company of friends, and family, breakfast, a…
Please join us in thanking our September Volunteer of the Month, Nicole Clayton. Nicole is a caring community member, always eager to support other members. She helps to moderate our Facebook group. She is always willing to lend a helping hand, for instance when we need help creating video clips or are seeking patient stories,…
In case you missed it, you can watch the recording here: https://youtu.be/OTM3IhICxOg Join us on September 28th at 7:00 pm Eastern, 4:00 pm Pacific time for our monthly webinar. This month, we will discuss Tools to Talk to your Kids about Cavernous Malformation and read the new book Bizcochito. Presenters are Nicole Clayton, Licensed Professional…
We are thrilled to recognize Rachel Paverman as the August Volunteer of the Month! Rachel is one of our go-to people when we need a hand with practically anything. From starring in our documentary “Eloquent” to supporting other community members, Rachel regularly goes out of her way to help. Most recently, Rachel has taken on…
Cincinnati Children’s is excited to host a family conference on August 5th from 12- 2 pm ET, featuring presentations from their top experts in CCM care, including special guest Connie Lee! After the conference, enjoy CCM family night at the Cincinnati Reds baseball game starting at 4:10 pm ET! Reserve your tickets for the game…
