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Patient Participation
The CCM Program Project Grant: An NIH-funded research success story
By Douglas Marchuk, Chair, Alliance to Cure Cavernous Malformation Scientific Advisory Board The National Institutes of Health (NIH) occasionally provides funding for a team of researchers, often from different institutions,…
CCM Patient or Caregiver? Join our Registry.
You have the knowledge and power to advance research for a CCM cure. By joining the Cavernous Malformation Registry, you will be strengthening a critical research tool. Learn more about…
CCM Cure Roadmap
New CCM Cure Roadmap shows the way to a cure We have a new resource showing the overlapping steps we are taking to achieve a permanent cure for CCM. We are grateful to the Chan…
CCM 101
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…
