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You’re Invited to Our Monthly Spinal Zoom Support Group We warmly welcome you to join our Spinal Zoom group, a gathering created for individuals living with a spinal cord cavernous malformation, whether currently navigating symptoms or adjusting after a lesion removal. Our group meets every third Tuesday of the month at 4:30 PM EST, 3:00...
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into larger...
Learn, connect, and find support on your CCM journey.
Join Lauren DeValk, MOTR/L, Occupational Therapist at Children’s Hospital Colorado, for a practical and informative session on adaptive equipment and everyday strategies that support greater independence. This webinar will explore tools and techniques that help individuals navigate daily tasks when experiencing decreased mobility, range of motion, coordination, strength, endurance, or dexterity. Lauren will highlight adaptive...
Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026.
Grab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
Tee Off for a Cure: Join Us for Our 4th Annual SoCal Swinging for a Cure Golf Scramble! 11:00 am Check-in/registration and driving range opens. 12:45 pm Putt-o-rama 1:00 pm Shotgun start 5:00 pm (approximately) turn in score cards. Join us for a "social hour" at the clubhouse patio, where we will announce the winners and hand out...
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
Please join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket, that's okay too! This meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group...
