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4 events,
This June during Cavernous Malformation Awareness Month—we invite you to walk, run, bike, swim, or roll 30 miles in honor of the daily strength and resilience of those living with cavernous malformation. Every mile you move raises awareness and critical funds for Alliance to Cure Cavernous Malformation, accelerating research, expanding expert care, and offering vital... 
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Registration link: https://alliance-to-cure-cavernous-malformation.perfectgolfevent.com/ 
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information. 
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here. |
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Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register. |
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CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We'll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce 
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting. |
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The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into... |
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Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here. |
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3 events,
Are you in Connecticut, Delaware, Georgia, Maine, Maryland, Massachusetts, Michigan, New Hampshire, New Jersey, New York, North Carolina, Ohio, Rhode Island, South Carolina, Vermont, Virginia, or West Virginia? Then this monthly Zoom is for YOU! Link here: https://us06web.zoom.us/j/82342279368?pwd=bylRwbisWn17EkorhfEgGiFMt9wLUT.1
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register. 
Resource Wednesday Every 2nd and 4th Wednedsay of the Month. 8:30 to 9:30 Eastern. Join us for Resource Wednesday, where we highlight valuable tools, expert guidance, and support networks for those navigating cerebral cavernous malformation. Click here to register. |
2 events,
Join us for our Men's support group on the 2nd Thursday of the month. Register here: https://us02web.zoom.us/meeting/register/tZUqde-orT4vHdc713vd0Ktu84Reb5zuvlmA
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting. |
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1 event,
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into larger... |
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2 events,
Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here. |
2 events,
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into... 
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into larger... |
1 event,
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register. |
1 event,
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting. |
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Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information. 
Are you in Alabama, Arkansas, Illinois, Iowa, Louisiana, Minnesota, Mississippi, Missouri, Oklahoma, or Wisconsin? Then, this monthly Zoom is for YOU! Link here: https://us06web.zoom.us/j/82770270690?pwd=eniehcBHsfsCG1btSXKnd5daCRbaaa.1
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here. |
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1 event,
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register. |
1 event,
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting. |
1 event,
Monthly Writers Club Meeting: Click here to register for our monthly writers club meeting. Our meetings are a casual opportunity to share ideas, and connect with our community through writing. Our goal is to have several short stories to share by Rare Disease Day 2026. |
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Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here. |
0 events,
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1 event,
Members of the Alliance to Cure Community in the age range of 16-26 are invited to our weekly summer connection group. This is a casual opportunity to connect with other young people in the CCM community. Click here to register. |
2 events,
Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting. 
Join Rachel for this monthly Millennial Support Group. It meets in a break-out room during our regular support group on the last Thursday of the month at 8:00 p.m. Eastern. Register here: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 |
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1 event,
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into... |
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