Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
12 events found.
Calendar
PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
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Events
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Central Standard Time Zone Zoom
Are you in Alabama, Arkansas, Illinois, Iowa, Louisiana, Minnesota, Mississippi, Missouri, Oklahoma, or Wisconsin? Then, this monthly Zoom is for YOU! We meet every third Monday of the month at 7:00 pm EST. Link here: https://us06web.zoom.us/j/82770270690?pwd=eniehcBHsfsCG1btSXKnd5daCRbaaa.1
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Monthly Spinal Zoom Group
You’re Invited to Our Monthly Spinal Zoom Support Group We warmly welcome you to join our Spinal Zoom group, a gathering created for individuals living with a spinal cord cavernous malformation, whether currently navigating symptoms or adjusting after a lesion removal. Our group meets every third Tuesday of the month at 4:30 PM EST, 3:00...
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New England Community Monthly Zoom
The purpose of our Monthly Community Zoom is to provide an opportunity for people to get to know each other, potentially leading to informal meet-ups such as having coffee together or taking a walk. The ultimate goal is to cultivate a sense of community, with the hope that these initial connections will evolve into larger...
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Welcome Wednesday
Virtual EventLearn, connect, and find support on your CCM journey.
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Webinar: AI Tools & Rare Disease: What Every Patient Should Know
FeaturedJoin Kim Snyder, PMP, CIPP/US, and Chelsea Wagner for a practical conversation about how artificial intelligence is showing up everywhere, from search engines to symptom checkers to your doctor’s office, and why using it wisely matters when you’re living with a rare disease. This webinar breaks down what AI can and cannot do for patients...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Virtual CCM Coffee & Support
Virtual EventGrab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Brainstem Group
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Millennial Support Group
Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket, that's okay too! This meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group...
