Welcome Wednesday
Virtual Event
Learn, connect, and find support on your CCM journey.
12 events found.
Calendar
PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.
Scroll below our calendar to find a link to Subscribe so you’ll always know when we schedule something new!
Events
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Webinar: AI Tools & Rare Disease: What Every Patient Should Know
FeaturedJoin Kim Snyder, PMP, CIPP/US, and Chelsea Wagner for a practical conversation about how artificial intelligence is showing up everywhere, from search engines to symptom checkers to your doctor’s office, and why using it wisely matters when you’re living with a rare disease. This webinar breaks down what AI can and cannot do for patients...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Virtual CCM Coffee & Support
Virtual EventGrab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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Brainstem Group
Brainstem Group Connect with others navigating life with a brainstem cavernous malformation in a supportive, understanding space. We meet on the fourth Thursday of each month at 7:00 PM Eastern, 4:00 PM Pacific to share experiences, ask questions, and build community. Whether you're newly diagnosed or have been living with CCM for years, you're welcome...
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
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Millennial Support Group
Join us for a monthly virtual support group for CCM patients ages 28 to 44! If you are a little bit outside of this age bracket, that's okay too! This meeting will take place on the fourth Thursday of each month at 8:00-9:00 PM EST. This meeting will take place during our regular support group...
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Virtual CCM Coffee & Support
Virtual EventGrab a coffee and join us for a casual support group meeting on Mondays at 12:00 PM Eastern, 9:00 PM Pacific. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.
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Care Partners’ Weekly Supporting the Supporters Meeting
Join other caregivers in this meeting designed to support the supporters. The meeting will happen on Mondays at 8:00 eastern. Register for the meeting here.
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CCM 101
CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We'll review slides covering the basics of the illness and then have a chance to chat and connect with others affected by this disease. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZEqce2ppjkiGdR5YLktrvueAnC7KXKtNhce
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CCM Support Group
Virtual EventPlease join us every Thursday evening at 8:00 PM Eastern, 5:00 PM Pacific for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/AQi9k5oXSz2FU_mx4-utdw After registering, you will receive a confirmation email with details on joining the meeting.
